Anarchism and Christianity: Re-Viewing the Politics of Jesus

   
when Dorothy Day—devout Catholic, cofounder
of the Catholic Worker movement,
and, notably, a U of I dropout—
described herself as an anarchist. Indeed,
the terms anarchist and anarchy conjure
images of disorder, chaos and bomb
throwers. This perception however is for
the most part a distorted notion of anarchist
thought, and has nothing to do with the anarchism of
Dorothy Day.
Surely, to talk about a likeness between Christianity and
anarchism is to risk being thought absurd and oxymoronic.
Some would argue that to use the label “anarchist” is to
encourage misapprehension, even hostility. But the same case
could just as cogently be made in accepting the label “Christian.”
For, after all, to be a Christian is to be a right-wing conservative,
right? So, while acknowledging the dangerous territory
of both these terms, I wish to show the essential congruity
between these two lines of thought—if we properly
understand them, of course. Hence this essay.
Anarchism is a term notoriously hard to pin down, as, by
definition, it resists a concrete definition. In its most basic
sense it means no rulers or no domination. Anarchists tend to
be suspicious of any clear blueprint for exactly what anarchy
would look like. There is certainly some value in pointing to
actions that look like a desirable way to live, but anarchism is
not static—it is dynamic, an orientation, acknowledging certain
principles, freedom being foremost, that must be maintained
at all times.
Currently, the most interesting group moving along this
line is the Zapatista movement in Chiapas, Mexico. Although
they have not identified themselves with anarchism explicitly,
I don’t think it would be unfair to describe them as at least
anarchistic. They are anti-political, in that they are not seeking
to run for office. Unlike their Latin American revolutionary
counterparts, they are not attempting to take over state
power. Instead, they are engaging in a social revolution,
desiring to simply live autonomously as they see fit, outside
of the pernicious confines of the “new world order” of free
market globalization. Marcos, who the media tend to identify
as their leader, neglecting his title Subcomandante, describes
the Zapatista worldview in his typically lyrical way: “I am as
I am and you are as you are; we are building a world where I
can be, without having to cease being me, where you can be,
without having to stop being you, and where neither I nor you
force another to be like me or you,’ when Zapatistas say, ‘a
world where many worlds fit’, we are saying, more or less,
‘everyone does his own thing.’” (October 26, 1999)
Inevitably the question arises: if everyone does their own
thing, won’t everyone just kill each other? This is a serious
issue, and human nature appears to be such that it’s pivotally
relevant to the topic at hand. While I don’t think the legitimacy
of anarchism lives or dies on this issue alone, it would be
foolish to deny the human impulse towards both good and
evil. But it is anarchists, surprisingly I think, who have the
most realistic take on this, as they understand that the more
power is decentralized, the less likely the temptation towards
evil. As Lord Acton famously remarked, “Power tends to corrupt;
absolute power corrupts absolutely.”
When asked about her anarchism, Dorothy Day would
often intone the work of Peter Kropotkin, the 19th century
Russian biologist, whose book Mutual Aid provided a scientific
basis for anarchism. Contra Darwin, he found through
empirical study a decided trend not towards competition, but
towards cooperation amongst animal and human species
when faced with survival. Implicit here is the true nature of
anarchy—personal responsibility—over and against anarchy
pejoratively understood to be what each individual is going to
do without regard to anyone else. In other words, when Marcos
says “everyone does his own thing,” he is not describing
an atomized existence free of others, but a society where people
live in solidarity with one another, responsible to everyone,
without looking to that most violent and impersonal
institution, the state.
Of course, any serious proponent of anarchism wouldn’t
argue that once the state was eliminated that everything
would become perfect and utopian. But there have been,
before the invention of the modern nationstate,
societies that have lived quite happy,
peaceful lives without a central coercive
apparatus. Some of these are elucidated in
Harold Barclay’s interesting study People
Without Government: An Anthropology of
Anarchy. Within the 20th century perhaps
the most notable
experiment in
anarchism was in
Spain during the
thirties. Although
the movement was
u l t i m a t e l y
quashed by Franco
and the fascists, it
remains in many
ways the largest
anarchist accomplishment to date. While I
have serious reservations about that accomplishment—
going too far into politics as
well as their use of violence—it does
remain a sign of hope for those of us today
working towards an alternative practice of
social life.
Part and parcel of any movement
towards the kind of society I am describing
is the acknowledgment and development of
a spiritual life. Even a thinker such as Noam
Chomsky, not noted for his religious faith,
has discussed this in an appeal towards a
libertarian socialist (i.e. anarchist) society,
in saying that he believes not only will a
spiritual change help bring about this new
order, but that this new order would actually contribute to
such a revolution. We live in such an alienated, narcissistic
culture that this is no easy task. But I do think the central
urgency of the day is, as Dorothy Day put it, how to bring
about a revolution of the heart.
Enter Christianity. Anarchists have not only resisted the
nation-state; they have, more broadly, stood in opposition to
anything that dominates: patriarchy, capitalism, consumering,
technology and, of course, Christianity. The Spanish
anarchists, noted above, for example, were steadfastly anti-
Christian. How then, can I, as a Christian, legitimately call
myself an anarchist? This will take some unpacking, though
unfortunately space limits a full articulation.
Jesus was a subversive in first century Palestine who stood
against power and domination in both its Roman and Jewish
guises. Again and again throughout the four Gospels, Jesus
challenges institutionalized authority. Even before adulthood,
echoing the story of Moses, he was saved by his parents’ disobedience
to the ruler Herod’s decree that all children under
the age of two be slaughtered. Herod’s political move reflected
his fear of a competitor. There was no such split then
between religion and politics. They were both intertwined.
Jesus’ followers, both during his life and after, called him
“Lord” and “Son of God,” thereby expressing directly political
sentiments—for, after all, these titles were given exclusively
to Caesar.
Jesus’ attitude towards power is especially clear in the
story of his 40-day retreat where satan tempts him. He makes
Jesus an offer: in exchange for worshipping satan, he can
have all the power over the world. Much, I’m sure, could be
done with that power—universal equality, justice, etc…—but
Jesus rejects it. The option to lord over others, even if it’s
seemingly benevolent, is to enter the realm of evil.
In contrast to the Romans, Jesus offers his own example as
the path to true servanthood: “You know that among the Gentiles
[i.e. the Romans] those whom they recognize as their
rulers lord it over them. But it is not so among you; but whoever
wishes to become great among you must be your servant,
and whoever wishes to be first among you must be slave
of all.” Throughout the Gospels, Jesus subverts top-down
authority and shows another way: the bottom-up and noncoercive
way of the cross.
Perhaps the most important feature of Jesus’ ministry was
that he rejected violence. The pacifism of Jesus’ life and teachings
find a consonance with anarchy. In fact,
those so-called anarchists that use violence
and coercion are a contradiction in terms. As
already stated, anarchy is a rejection of domination.
To use violence to create a society
without domination is a non sequitur. If we
as Christians cannot support war, this at least
implicitly subverts
the work of the
state, which is war.
As Randolph
Bourne noted
almost one hundred
years ago, “war is
the health of the
state.” If the state
were actually to
live out Jesus’
teachings—”love
your enemies, bless them that curse you, do
good to those that hate you”—it would
quickly wither away.
The problem with Christianity is that when
measured up to the radical life of Jesus it
should largely be considered a failure.
Some commentators have observed though,
that the church has not been so much Christian
as constantinian. For the first three centuries
the church lived out a rather faithful
vision of Christ. The constantinian arrangement
refers, however, to the emperor Constantine’s
legalization of Christianity in the
4th century. The result was an amalgam of
power and the Christian faith. To be a citizen
of the empire and a Christian became one and the same.
Out went radical, counter-cultural Christianity and in came
an imperial, violent Christianity.
Within this rather sad history of the constantinian church of
the past 1700 years there has remained a current of faithful revolutionary
Christians. And it is in these groups that there is to
be found hope for a renewed, anarchical Christianity. Examples
include: the Beguines, Waldensians, Desert Fathers and
Mothers, Quakers, Diggers, Anabaptists and within the 20th
century, the anarchist, pacifist movement, the Catholic Worker.
As noted above, most anarchists are as equally opposed
to the state as they are of the church. As a Christian myself, I
can sympathize—the dominant path of Christianity has been
in collusion with oppression. The groups cited above do
point out a path that is important to highlight, however. They
too resist Bakunin’s notion of God as tyrant in the sky.
Instead, they view God as, above all, Love. Being inherently
non-coercive, love is willing to suffer, to persevere until we
turn towards God. The cross is that sign par excellence for
Christians. If God then won’t trespass on our gift of freedom,
how could we possibly justify doing what God refuses
to do to one another?
It has been my goal in this essay to show that Christians
should take seriously what anarchists have complained about
in our religion, and that the both of us, perhaps rather surprisingly,
share a similar orientation. Given the political options
of our era, the Christian should choose anarchism, for it’s the
only one that rejects the state and its coercion altogether,
unlike the socialists, greens, democrats, etc. If we realize this,
there’s a chance that we can truly “build a new society within
the shell of the old.”
I would invite anyone intrigued by this line of thinking to
come to the 4th annual Anarchism and Christianity conference
that will be taking place at the Illinois Disciples Foundation
on August 4-5th. We will have a chance to explore more
in depth what it means to bring Christianity and anarchism
together to not only engage a critique of the state, but more
practically—How do we live in community? What is our
relationship to the police? Technology? Education? For more
information, go to www.jesusradicals.com
I would also invite folks interested in a practical outlet to
consider coming over to the Catholic Worker House where
many of us are intentionally asking these questions and trying
to live out the answers.

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Homeopathy–The Choice of More Women

  uses extremely
small doses of substances prepared in a special
way to re-vitalize a person’s health. The
choice of the medicine, referred to as a
“remedy,” is individualized for each patient
according to the symptoms and characteristics
of that patient. In true homeopathy it is
possible for several women with the same
diagnosis to each receive a different remedy.
So homeopathic treatment is not “one
size fits all.” Furthermore, it is even possible
for a patient with an undiagnosable
problem to receive effective treatment.
When used correctly, homeopathic healing
is gentle and long lasting, because the remedies
work with the body’s symptoms and
other defense mechanisms instead of
against them.
In the early 1800’s Samuel Hahnemann,
a German-speaking medical doctor, first
systematized contemporary homeopathy. He
found that if he prescribed holistically-not
just for the patient’s main complaint(s) –
that the patient would experience a deeper
healing. In some cases even life-threatening
and “incurable” diseases have been cured
without the usual side effects. A homeopath
treats each woman as an individual and as a
whole, taking into consideration all of
whom she is and all of her history, not just
her chief complaint. Homeopathy is a
method of treatment available to lay persons
for acute self-care, as well as a medical specialty
prescribed by licensed practitioners.
TREATING THE WHOLE WOMAN, NOT JUST THE
DIAGNOSIS
Homeopathy like many other “complementary
and alternative” modalities is a
form of energy or vibrational medicine.
Thus, it views disease as an imbalance in
the person’s energy or life force (like ki or
chi in Oriental medicine). More specifically,
homeopathy sees disease as an “untunement”
of the life force, as if each of us were
beautiful, sensitive, yet strong musical
instruments in need of tuning. The correct
homeopathic remedy then helps to “retune”
the life force, putting us back into balance,
so we can once again sing or play “on key,”
achieving our full potential.
Like other energy modalities, homeopathy
recognizes that a person out of tune
(vibrationally, energetically) is more susceptible
to disease. Being “tuned up” means
being in balance: mentally, emotionally and
physically. So to be truly healthy a woman
needs to be in balance on all of these levels.
Since the remedies work in an integrated
way on all these levels, homeopathic healing
is truly holistic with a general improvement
of all symptoms. Even those symptoms that
may have seemed unrelated may improve.
The healing not only restores physical and
mental health but also generates better attitude
and enjoyment of life. Long suppressed
or repressed emotions are often released,
sometimes in dreams. Sometimes major
shifts in significant relationships occur.
Everything is related and connected in the
holistic homeopathic perspective.
In order to find the correct remedy, the
homeopath must understand the patient as a
whole: all her noteworthy dreams, fears, and
patterns, as well as symptoms. She must be
able and willing to reveal all these, while the
homeopath listens for two to three hours.
The homeopath must learn about every
major event and trauma of the woman’s life
as well as how they have contributed to any
imbalances in her eznergy, in her life force.
The homeopath looks for how this woman’s
life experiences and symptom manifestations
are different or special compared to
other women with the same diagnoses.
Since the process is holistic, the woman
does not “take her uterus” to one practitioner
and her joints to another. Thus, in many
cases only one medicine heals both the
reproductive system as well as the joints.
Although the interview process may
seem like a counseling session, it is not. The
homeopath’s purpose is to listen and to discern
indicators for the woman’s correct
remedy. The homeopath will generally not
offer advice or make judgments, but only
ask questions to get more relevant information,
indicating the correct remedy.
MENOPAUSE & HRT
Homeopathy acknowledges that
menopause is a natural transition in a
woman’s life, just as puberty is. Since we do
not try to avert puberty with special treatments,
why should we try to avert the transition
at the other end of the spectrum? Most
women in good health with appropriate diet
and exercise should be able to complete this
transition with little discomfort, without
hormone replacement, and live gracefully
for years beyond menopause. Research has
not verified that hormone replacement is
consistently a preventive measure for bone
loss. On the other hand, many studies have
shown that calcium loss and bone weakness
are life-style related (excess ingestion of
meat, coffee, sugar and alcohol, as well as
lack of proper exercise and lack of natural
calcium in the diet). Last but certainly not
least, hormone replacement may contribute
to a higher risk of cancer.
During menopause if a woman is “out of
tune,” she may experience bleeding,
fatigue, headaches, hot flashes, insomnia,
lower sexual energy, vaginal dryness and
other symptoms. The conventional treatment
of hormone replacement can be
avoided by homeopathic treatment which
gradually transitions the woman through
menopause, as the symptoms wane and disappear.
In the words of a popular homeopathic
doctor:
“The current trend in medicine is to
give hormone replacement at the first
signs of menopause as indicated by
decreasing hormone levels on lab work.
This reflects an empty rationality.
Menopause is no more a disease than
puberty is a disease. In homeopathy we
do not treat the lab work; we treat the
patient. Menopausal women experiencing
discomfort with menopause are
treated as unique individuals the same
way all patients are treated with homeopathy.
Homeopathy has an excellent
record of treating women through this
transitional time without the use of
exogenous hormones.”
A number of natural plant hormonelike
substances are promoted as alternatives
to synthetic hormone replacement.
These may be preferable in many
instances to synthetic replacement, but
they still reflect a disease-oriented
approach to what is, in reality, a natural
process.” (Timothy Dooley, MD, ND in
Homeopathy: Beyond Flat Earth Medicine,
p. 72)
Dr. Dooley concedes that very few
women may benefit from HRT, but this
must be individualized by their history and
by the potential risks of hormone replacement
therapy.
Finally, in the words of the late Dr.
Maesimund Panos:
“Unless you are going to take estrogen
for the rest of your life, sooner or later you
must experience the shifting of the hormone
balance, and some of the symptoms that
accompany this change. Our own defense
mechanism is well equipped to make the
necessary adjustments without the interference
of a drug whose purpose is to block the
normal action of the body. Taking estrogen
is a risky and expensive way of postponing
the inevitable readjustment that Nature has
decreed.” (Maesimund Panos, MD in
Homeopathic Medicine at Home, p.229)
HOMEOPATHIC MEDICINES OR “REMEDIES”
Homeopathic remedies work at the energetic
level. They can, therefore, stimulate
the recurrence of old symptoms or the
worsening of current symptoms. This phenomenon
is called “aggravation” and can
also occur with treatment by any other
deep-acting energy medicine or modality.
Aggravation may last a few minutes or
hours or a few days, but it is a small price to
pay for reversal of symptoms that have lasted
years. No pain, no gain! There are methods
of administering the remedies that
make the aggravation process more gentle.
So if this is of concern to you, be sure to ask
your homeopath about this.
After the preparation of a homeopathic
remedy, the original substance is usually so
highly diluted that there is little or no molecular
substance left in the remedy, hence the
accusations of quackery (“just sugar pellets
or water”). As the king in The King and I
stated to his children: “If we only believe
what we see, what is the use of school?”
What is left in the remedy is the healing
“energy” or healing vibration of the original
substance, acting as a stimulus to a
woman’s life force, helping the woman to
re-tune, re-balance, re-vitalize, and thus
cure herself.
In my own life menstrual cramps, premenstrual
symptoms and later hot flashes
were relieved. More significantly, disabling
headaches due to food allergies are 90%
improved! My daughter who is quadriplegic
due to an accident is at a very high level
of health and has excellent quality of life
partially due to homeopathy. Unlike most
quadriplegics – who are very susceptible to
respiratory infections and to those infections
turning into bronchitis and pneumonia
– she rarely catches “colds.” When she
does, they never turn into bronchitis or
pneumonia. She only had pneumonia once,
during the first months after her accident
and recovered within a week with homeopathic
treatment and without hospitalization.
After her accident, which included a
closed head injury, the doctor anticipated
swelling of the brain. To the doctor’s astonishment,
there was none.
FINDING A HOMEOPATH
Think divinely, drink good water, eat
well, keep good company and get exercise.
These are prerequisites for health. Stay “in
tune” and stay healthy. If you find that these
are not enough, know that a good homeopath
may help you.
The best way to find a good homeopath
is by personal referral. Helpful hints about
finding a homeopath and criteria for determining
if a homeopath is good can be found
at the website www.homoeopathic.com.
There are also directories of homeopaths on
the websites of the National Center of
Homeopathy www.homeopathic.org and
the North American Society of Homeopaths
www.homeopathy.org. For local info contact
visit www.homeopathyillinois.org.

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Reducing Post-Partum Depression the Village Way

   the country was
shocked to learn how Andrea
Yates killed her children during
an episode of post partum
psychosis. The “eye for an
eye” folks wanted her electrocuted.
The “spare the rod,
spoil the child” folks wanted her punished
with a harsh sentence that would deter future
killings. The “there but by the grace of God
go I” folks wanted the world to wake up to
the reality of how postpartum mood disorders
(PPMD) can change a woman’s life.
In the aftermath the New York Times began
shedding light on the tragedy. Allegedly,
Andrea’s “controlling” husband limited her
free time to two hours per week (despite the
fact that she was isolated and also caring for
and later grieving for her Alzheimers-ridden
father), her church discouraged treatment and
encouraged baby-making, her psychiatrist
minimized her condition and failed to prescribe
an anti-psychotic medication, and
Andrea was previously discharged from clinics
prematurely because insurance wouldn’t
pay for extended services (i.e., “coverage
maxed out”). Knowing that these were things
we could change, everybody wanted to fix
the system so such tragedies would never
happen again.
HOW HAVE ATTITUDES TOWARD PPMD CHANGED
SINCE ANDREA YATES’ CASE?
Five years later people are still downplaying
the reality of PPMD and its impact on
children (see Julia’s vignette this issue). Just
three months ago a woman told me, “My husband
doesn’t believe post partum depression
is real. He thinks I should just get over it. You
know, ‘Just do it!’” How unfortunate because
PPMD generally responds to treatment (see
sidebar on PPMD). When family members or
professionals minimize a mother’s concerns,
or fail to acknowledge the reality of her
depression, a mother is hard-pressed to get
treatment. Rather than getting over it, individuals
with PPMD can easily spiral downward
in negative thinking that worsens their
condition and distances support. Consequently,
it is hard for them to give the attention
their infants need to be happy and to build
solid relationships (Field, 1997).
Five years later the “system” is still aggravating
PPMD rather than preventing it and
depriving women access to quality treatment.
Beck (2001) identified 13 significant predictors
of PPD (listed in order of effect size):
prenatal depression, low self esteem, childcare
stress, prenatal anxiety, life stress, low
social support, poor marital relationship, history
of previous depression, infant temperament
problems/colic, maternity blues, single
parent, low socioeconomic status, and
unplanned/unwanted pregnancy. Although
there is a subgroup of women who are vulnerable
to hormone changes during pregnancy,
radical hormonal changes did not make it to
the list. Rather, pregnancy seems to trigger
PPMD in women who have one or more of
these risk factors, half of which, if not more,
are affected by social policy (italicized items).
Social support is the factor that intrigues
me the most. We now have ample evidence
connecting it to PPMDs, even a causal role
(O’Hara 1985, Field et al. 1985; and Gotlib et
al. 1991). According to JAMA (2002), the
hormone oxytocin (produced during natural
labor and breastfeeding) “activates an
evolved biological system underlying mammalian
mother-infant attachment behavior…
However, under conditions of high
stress and inadequate support, this emotional
reactivity may increase vulnerability to
depression by rendering a woman more susceptible
to stress.”
The powerful impact of poor social support
following the birth of a baby leaves men
vulnerable to PPMD as well (see Hagen
1999). From an evolutionary perspective,
reduced social support increases the costs
borne by caregivers relative to the benefits of
offspring, especially when infants already
have problems. Reducing investment in the
child reduces the costs. Hence, PPMD is less
of an individual’s mental illness, and more of
a population dysfunction: community-based
interventions are needed.
CALL FOR IMPROVED FAMILY LEAVE POLICIES
The current federal Family and Medical
Leave Act protects parents against job loss
for up to three months after a baby’s birth.
However, protected leave is limited to individuals
who have worked at least 12 months
for a company with 50 or more employees.
For newly hired workers, workers with insecure
jobs or jobs lacking fringe benefits, or
workers who don’t meet the legal definition
of “family”, taking a leave often means quitting
and finding a new job later. Consequently,
most parents return to work well before
three months. Of families who wanted a
longer leave but did not take it, 88% would
have taken the time if income replacement
were available (Cantor, Waldfogel, Kerwin,
Wright, Levin, Rauch, Hagerty, & Kudela,
2001). In short, millions cannot afford to take
an unpaid leave when they need it the most.
Current family leave policies don’t offer
families ample time to recover and support
each other following a birth. A leave gives
the mother time to physially recover and
adapt to her infant. It gives parents time to
adjust their relationship, balance family
chores, recover from sleep loss, integrate the
baby into the family, learn their baby’s cues
and patterns, and feel effective in soothing
their baby and organizing her day. Three
months is too short for many families to
accomplish these tasks let alone give their
babies’ development solid grounding. Most
infants are not socially responsive until three
to four months of age, and many parents need
longer to feel the rewards of parenting. Most
infants do not have the capacity to sleep
through the night until four months of age,
and parents need time to make up lost sleep.
Early return to work can disrupt the
adjustments that families must make after the
birth of a child. When a mother is at risk for
depression, early return to work, especially
when caring for a child with special needs,
could push her into depression. Developmental
research shows that shorter leaves are
associated with increased depressive symptoms
in mothers and with more negative
affect and behavior toward infants at 4
months. When a family has a significant
stressor (e.g., depression, poor physical
health, infant with special needs or difficult
temperament), longer leaves are associated
with increased positive affect, sensitivity, and
responsiveness and decreased negative interactions
toward infants at four months of age
(Clark, Hyde, Essex, & Klein, 1997; also see
Julia’s vignette this issue).
It is unacceptable that employees feel
lucky if they have a few weeks of paid leave
after a baby’s birth. Ask your state representatives
to support flexible equal-opportunity
family-work policies that recognize individual
differences and vulnerabilities in families’
needs and values. Consider pushing for
HB 3470, the Illinois Family Leave Insurance
Program (FLIP), which has been sitting
in the House Rules Committee since March
2005 (see sidebar), or the socialist models
used in Scandinavia (see sidebar on page 6).
PUSH FOR FAMILY SUPPORT PROGRAMS
In several places around the world women
are pampered for 40 days after they give
birth. Usually the grandmother comes to
make special soups that will replenish the
mother’s blood supply and to tend to household
tasks so the mother can sleep and bond
with her baby. In the US, many women give
birth in a community far from family or
friends who might be willing or able to stay
by their side for 40 days. Unless a woman is
wealthy enough to hire a post-partum doula,
she likely spends long hours at home alone
with her infant. This lack of social support is
the last thing she needs.
Recently I asked a local mother who lives
with her spouse and two children, a 4-year-old
and 3-month-old, how she spends her day. She
told me that on the six days per week when her
husband works, she spends 10 hours/day alone
with her children (not counting night-time
feedings while her husband sleeps), because,
as she said, “Most of the people around me
work during the day and my husband takes our
car so it’s hard to get out.”
In a 2002 survey, 35% of women reported
feeling isolated in the months following birth
(childbirthconnection.org). Isolation prevents
early detection and deprives women of the
support they need to combat stress. Our current
solution: wait for depression to happen
and train pediatricians to screen women for
PPD during well-baby visits. There are more
proactive approaches.
Individuals could mobilize their neighborhoods
to take care of their families with
new babies (checking on them, helping them
laugh, offering respite, connecting them with
other families, listening to their stories, and
referring them to the Crisis Nursery, Family
Service, Healthy Families, or http://helpbook.
prairienet.org when necessary). Early
Childhood Care and Education providers
could join the Strengthening Families Illinois
network (strengtheningfamiliesillinois.
org) to learn how to care for families, not just children. Hospitals and public health officials could add programs like the
Nurse-Family Partnership (www.nursefamilypartnership.org) that send highly educated
nurse home visitors or infant mental health specialists to visit families bi-weekly
during pregnancy and the first two years after birth. These programs can save 4
times the money spent on them by improving the lives of mothers and their children
up to15 years down the line (including reduced arrests and negative adjudications).
PUSH FOR UNIVERSAL ACCESS TO QUALITY HEALTH CARE
In my recent search for health insurance I discovered that many health care packages
do not offer maternity care, let alone coverage for pregnancy related conditions
like PPMD. Policies with maternity care come at a very high premium and/or are difficult
or impossible to add after a woman becomes pregnant. Texas, where Andrea
Yates lives, ranks near the bottom in the U.S. for mental health care
(healthyplace.com). A doctor referenced on this site said that even though “improved
drug therapy and outpatient care have reduced the need for long hospital stays…the
time authorized by most managed care plans, often just 10 days…still isn’t nearly
enough” (also see Julia’s vignette this issue). “Managed care selectively and deliberately
cut the funding and the benefits for people with mental illnesses and addictive
disorders in this country,” says Dr. Peel. “It’s deliberate corporate practice….resulting
in drive-by hospitalizations.”
To bolster these programs let your representatives know that you want to invest your
tax dollars in wrap-around programs for families with infants instead of funding things
like war. Shared responsibility for family care cycles back so that children, families,
employers, workers, and citizens all benefit. It really does take a village to raise a child.

Posted in Healthcare, Human Rights, Women | Leave a comment

Birth Doulas: Professional Labor Support

     will be a lifelong memory and
yours will be changed forever. Inviting a doula into your
birth space will help you have the most positive birth experience
possible.
A doula…
• Recognizes birth as a key life experience and as a fundamental
right of passage.
• Understands the basic physiology and the emotional
needs of a woman in labor.
• Compliments and works with the woman’s partner and
care provider.
• Allows the partner to participate at his or her own comfort
level rather than as the “labor authority.”
• Stays with you throughout your entire labor.
• Provides emotional, physical, and spiritual support.
A doula is not…
• Your voice, she can however help you find your voice,
helping you to form your thoughts and questions.
• A medical professional. A doula stays within her code of
practice and will not perform any medical procedures such
as vaginal exams, blood pressure…etc.
• Someone who tells you how to give birth.
A doula will work to educate you in simple ways:
• Trust your body first.
• Ask questions. Know what your provider’s standard procedures
are and if they don’t agree with your thoughts and
desires for birth, shop around and find someone who does.
• She will support you at home and/or in the hospital.
• If you choose to use medication, know and remember
that all women can give birth without it as long as there is
not a medical reason to use it. Know the facts about medication
before you choose to use.
• Trust is the key.
Studies done by Marshall H. Klaus, M.D., John H. Kennell,
M.D., and Phyllis H. Klaus, C.S.W., M.F.T. indicate
that doulas help…
• Decrease overall cesarean rates.
• Decrease length of labor.
• Decrease the need for epidurals.
• Decrease the use of oxytocin.
• Increase the confidence of the partner’s participation.
• Decrease postpartum depression and levels of anxiety.
It breaks my heart to hear a woman say that her birth was the
most horrible and painful experience in her life. That legacy
was passed to me by my mother and I swore I would not
pass it to my daughter. I wish I could help just one woman
understand that birth is the hardest work she will ever do in
her life and, although it hurts, it will teach her how powerful
and strong she is! We as doulas cannot keep unwanted
things from happening in your birth but we can stand with
you and hold your spirit in our heart as you go through this
part of your life. Birth is not something to fear; it is something
to respect and honor. And you can do it!
If you would like to know more about doulas and my
alternative birth sessions, Birth with Courage and Power,
visit suelathedoula.com.

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Childbirth: Home v. Hospital

   ’ , I was led to
believe throughout the prenatal period
that my O.B. and the hospital staff would
be supportive of a natural birth. When it
came time to actually labor and deliver,
the idea they seemed to have of “supporting”
a natural birth was not to physically
force you to have (most) interventions. (I
say “most” because the use of the vacuum
extractor WAS physically forced on
me.) There was no alternative offered to
any of the interventions, no actual “support”.
The two options for dealing with
the pain and difficulty of labor seemed to
be 1) drugs, or 2) nothing whatsoever. I
think it’s dishonest to allow a woman to
think you’re going to support her in natural
birth, when the entire system is set
up against it.
I was sent to the hospital by my OB
after about 24 hours of unproductive
labor, so they could start me on pitocin, an artificial version
of the hormone that gets labor going and keeps it
moving along. I had indicated that I didn’t want pitocin,
and had researched ways of getting labor moving, but
none of these measures were encouraged. Because of the
pitocin, continuous fetal monitoring was required. After
several hours strapped down to the bed with the fetal
monitor on one side and the IV on the other, I finally gave
in and started Nubain (a narcotic). The nurse came in to
turn up the pitocin periodically, despite my protests. After
several more hours, when I was fully dilated but had
stopped feeling contractions for some reason, I was told I
had to push. The baby was still very high up, and it was
really too early to push. He went into fetal distress and
was then pulled out by vacuum extractor without any
explanation or giving me even 10 seconds to get mentally
prepared for the insertion of the vacuum extractor. (Traumatic
birth has been compared to rape, incidentally, and I
suffered flashbacks and nightmares about the birth for
weeks.) I later read in a medical journal
that having the mother push when the
baby is up too high can cause fetal distress.
So basically, my OB actually created
a medical emergency. The term for this
type of situation is “iatrogenic”, meaning
that the physician’s actions actually do
more harm than doing nothing at all
would have done.
In the whole “emergency vacuum
extraction” fiasco, part of my vaginal
wall was caught in the thing, causing
damage that took many months to heal. This caused much
stress in our marriage, as we were not sure we would ever
be able to have another child. When I went back to see my
OB at about eight months postpartum to make sure everything
had healed right, she said it looked fine and told me
to use KY Jelly. I only found out after requesting (and
paying for) the birth record from the hospital that my
vaginal wall had been caught in the vacuum extractor.
Another example of dishonesty. I also believe that I was
given a “honeymoon stitch”, because things felt tighter
down there than before.
In contrast, my homebirth was a different experience
entirely. I realize that some of this is due to the fact that
this was my second baby, but not all of it. I am convinced
that if I had had my first child in the care of the homebirth
midwives, everything would have turned out completely
different than in the hospital. In my homebirth, I was able
to move around freely throughout the house. I was able to
work with my body, getting into different positions
depending on what felt better. We had planned to use a
birthing tub, but couldn’t get it filled up in time. If I had
had the baby at the hospital, they would not have allowed
me to push the baby out in the birthing tub because of my
weight. I am heavy but not morbidly obese or anything.
My homebirth midwives never did a single cervical
check. I didn’t want them, and they don’t do them unless
requested by the mother. Cervical checks don’t really give
much useful information, and can lead to the mother
being told to push when it’s not really time yet. They can
also be disheartening for the mother in a labor that is not
following the classic “one centimeter per hour” pattern.
The homebirth midwives used a Doppler periodically
to monitor the baby’s heartrate. This allowed us to have
that information without interfering with my labor, as the
continuous fetal monitoring had at the hospital.
When the baby was born, he was handed to me immediately,
and the cord was let be until it finished pulsating
(giving the baby that valuable, oxygenated blood). I was
allowed to sit and hold him while waiting for the placenta
to come out. There was no rush. (At the hospital birth, the
cord had been cut immediately and the placenta was
pulled out by the OB right away.) The midwives had
pitocin on hand, in case it became necessary to encourage
the placenta to come out that way.
While I experienced more pain at the time of the actual
birth with the homebirth (because of not having any shots
in my bottom, as had been done in the hospital), the
recovery time was not comparable at all. I
didn’t have any stitches, despite a 2nd
degree tear, and experienced no discomfort.
My bottom actually feels BETTER
now than it did before the delivery.
I had never felt the urge to push with my
first child because he was up too high. In
contrast, my second child was able to
move down on his own and put pressure
on my perineum, making me push without
even realizing it. I felt like I was on a
runaway train. My body was just doing it
on its own. The mind-body connection was allowed to
happen. Very, very different from the over-medicalized
first birth.
Here are the interventions I had during my first birth and
the consequences they can have (off the top of my head):
• IV with fluids: Can cause labor to slow because the
mother’s hormone levels drop. Can also cause swelling in
the birth canal, making it harder for the baby to work its
way out. Can cause baby to be overhydrated at birth, making
for a larger weight loss in the early days before nursing
is well-established, which can cause unnecessary concern
on the part of parents or doctors.
• Pitocin: Can cause overzealous contractions, which
are harder on the mother and can cause fetal distress.
• Nubain: Makes the mother loopy and makes for a
sleepy baby, who can have a harder time getting started
nursing.
• Episiotomy: They are done to avoid tearing or to get
the baby out faster, but many tears end up being WORSE
because of the episiotomy. They cut through muscle,
which takes longer to heal.
• Vacuum extractor delivery: Can be a wonderful tool
if used sparingly, but damage can be done to the mother. I
think it is also painful to the baby’s head.
There were no interventions like these in the homebirth.
I had good perineal support and only had a 2nd
degree tear, despite the baby being born very, very quickly,
not allowing things to stretch.

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You Were Told What!? A short history on the refusal of insurance plans and pharmacists to fill prescriptions for birth control and emergency contraception

  ,
women have been at the
mercy of insurance carriers
and employers who have
refused to include contraceptive
options as part of their
health plans. Women who
have been prescribed birth control for medicinal
purposes other than contraception have
had to petition their providers to make an
exception. Permission was given grudgingly
after many phone calls and documentation.
In 2001, a University of Illinois employee,
whom we will call Sandra, got fed up
with her insurance provider’s refusal of
coverage of birth control for endometriosis.
Sandra called the Champaign County
Health Care Consumers to see what she
could do. While the doctor and the insurance
provider duked it out, a call went out
to other health care agencies to meet and
discuss what could be done to address the
issue. The Women’s Health Task Force
(WHTF) was formed and this issue was the
first one to be tackled. It is ironic to note
that U of I students had easy access to most
birth control options at McKinley Health
Center through student insurance.
This same problem was being addressed
in several other states with law suits being
filed in Washington state for discrimination
based on gender. Men had no problem getting
Viagra but women could not get birth
control. Title IX was invoked and the first
domino fell, soon followed by others. The
EEOC ruled in the favor of women and
employers began to take notice. WHTF
requested an audience with the Chancellor
to discuss broadening coverage to faculty
and staff for birth control. After several
months, U of I announced that faculty and
staff could pick up birth control at McKinley,
a first step. Meanwhile, efforts were
being spearheaded by Planned Parenthood at
the state level which would require employers
and insurance companies to include birth
control in plans that included pharmacy coverage.
This provision was passed into law
with exceptions for small businesses, businesses
that were self-insured and businesses
that have corporate offices in states where
coverage is not required. Thus the U of I was
required to offer the benefit while Carle
Hospital was not.
The next project of the WHTF was to
spread the word about Emergency Contraception,
a low dosage of regular birth control
that prevents pregnancy when taken
within 120 hours of unprotected sex. Presumably,
pharmacies that carried birth control
would also carry Plan B, a brand of
emergency contraception. Not so! The list
for Champaign County showed that some
pharmacies did not or would not stock Plan
B, and some pharmacists refused to fill a
prescription. Additionally, Catholic Hospitals
would not even give information about
Plan B to victims of sexual assault.
The WHTF spent many hours at rallies,
dispensing information and collecting signatures
for legislators who were discussing
another law to make EC available. Planned
Parenthood worked with the Governor’s
staff to encourage him to pass a rule making
it illegal for a pharmacist to refuse to fill a
prescription for EC or birth control. This
rule became law in January of 2006.
Pharmacists have refused to fill prescriptions,
to refer to pharmacists who will
fill the script and in some cases, have taken
the script and refused to return it to the
patient. They have lectured and shamed
patients coming in for the drug. A recent
decision by Wal-Mart to carry Plan B heralded
the end to a series of requests to stop
their discriminatory behavior. Many smaller
communities only have one pharmacy and it
is often a Wal-Mart which meant that
women had to drive many miles to a
provider who would dispense Plan B.
In Illinois, several pharmacists have
been terminated as a result of their refusal
to fill the prescription. The excuse is their
moral objection to birth control and they
would like to invoke the conscience clause
used by medical providers. Planned Parenthood
and most physicians do not consider
pharmacists health care providers. Several
Right Wing groups have taken this issue as
their “cause celebre” and are suing the State
of Illinois for not allowing pharmacists to
pursue their career with their own moral
interpretation. The governor has recently
submitted a rule that would make a posting
of information on access to birth control
and emergency contraception mandatory.
Citizen input is being solicited by June 5.
When practitioners and professionals
begin to use their own moral compass to
control women’s health care access, women
invariably lose. Planned Parenthood and its
allies are ensuring the future of women’s
health through excellent health care, medically
accurate education and advocacy.

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Vigil For Quentin Larry and Terrell Layfield

 , July 22 at 8pm
a vigil will be held for
Quentin Larry, Terrell Layfield,
and others who have
died while in police custody
at the Champaign County jail.
Bring a candle and meet us at
204 E. Main, downtown Urbana, in front of
the Champaign County Sheriff’s office.
This vigil is first to honor the individuals
and their families. Secondly, it is a call for an
independent investigation into the five deaths
that have occurred within the past two years.
We plan to go to the Champaign County
Board with the demand that an independent
investigation be conducted into all five deaths.
Public concern arose in 2004 when three
suicides occurred within six months. IMC
reporters made contact with Twymenia Layfield,
the wife of Terrell Layfield, the last of
the three alleged suicides. It was through
conversations with Mrs. Layfield that they
found out about the restrictive and arbitrary
visitation rules, as well as the high cost of
phone calls from the Champaign County jail.
After these were exposed, Sheriff Walsh
allowed for more than the cut off number of
fifty visitations. Sandra Ahten and Champaign-
Urbana Citizens for Peace and Justice
successfully rallied to get the County Board
to renegotiate a contract awarding $14,000 a
month kickback to a phone company.
IMC reporters accompanied Mrs. Layfield
to the coroner’s inquest and all left feeling
they had not been given a full
explanation of Terell’s death.
The public hearing involved
Urbana officer Mike Metzler
giving an account of the
alleged suicide. No evidence
was presented, no photographs,
no bed sheet
claimed he used. No witnesses
testified, not the officer who
found the body. The matter
was quickly settled in under
ten minutes.
This coroner’s inquest was the culmination
of an investigation that was far from
independent. The Urbana police force was
assigned to investigate the Champaign County
jail. In a small town such as Urbana-
Champaign, the authorities are a small circle
of friends who know one another on a first
name basis and have lunch together.
From the beginning, the Sheriff could not
start his investigation until the Champaign
County State’s Attorney determined that no
criminal charges were to be filed. If the Sheriff
was to be sued, State’s Attorney Julia
Reitz would be his lawyer. In this scenario, as
Sandra Ahten writes, “the State’s Attorney
would be both prosecution and defense”
(ucimc.org 2/11/2005).
An independent investigation into the five
deaths is the final piece in the puzzle to find out
what is going on in the Champaign County jail.
The repeated incidents suggest that these
deaths are not “accidental” but
systemic and procedural. In the
words of Mrs. Layfield, “In my
opinion, suicides are not only
the fault of the jail system, but
also the justice system.”
To police officers, jail guards,
lawyers, and judges, inmates
are not people who have loved
ones, wives, and children. Terrell
Layfield was charged with
cocaine possession. He took it
to trial and was found innocent. Yet he was
found guilty on the trivial charge of obstruction
of justice for lying to the police about his
name. The heavy sentence of more than five
years given by Judge Heidi Ladd should be
seen as retribution for his beating the drug
charges and lying to an officer. Layfield was
obviously distraught about the long sentence.
When he was denied a routine phone call to his
wife, he became upset and began to make noise
in his cell. He was not responded to for several
hours. Committing suicide was his final act of
protest against an unfair justice system.
According to the Department of Justice,
drug offenders were found to have the lowest
suicide and homicide rates of all inmates.
Terrell Layfield was not suicidal before he
entered the Champaign County jail. The
inhumane condition in our jails and prisons
do not correct, but only create more death
and destruction. Those who administer justice
become jaded and themselves become
dehumanized. In the courtroom, Judge Heidi
Ladd said Layfield received several years
because he was “living like a bum.”
On the ucimc.org web site, Mrs. Layfield
responded to these comments saying Terrell
was also a father, husband, friend, and son. She
blamed the authorities who failed to take the
first suicides seriously, “What did they change
to prevent this from happening again to me – it
seems nothing!” Her words were prophetic.
While steps have been taken by Sheriff Walsh,
not enough has been done to prevent two more
deaths in the jail. How many more before we
have a restoration of the public trust?
The individuals and their families are the
real victims in this country’s War on Drugs.
Quentin Larry, who died of a heart attack the
Sheriff is calling drug-related, is the latest victim.
Larry died over Memorial Day weekend
and his case is still under investigation. The
City of Champaign police have been assigned
to investigate this incident, another inside job.
The families of Quentin Larry and Terrell
Layfield are supporting this vigil and asking
for a full explanation of the death of their
loved ones. Join us on July 22 at 8 pm in
front of the Sheriff’s office, 204 E. Main
Street, downtown Urbana. The vigil is being
sponsored by the Urban League, Champaign
Urbana Citizens for Peace and Justice,
Visionaries Educating Youth and Adults
(VEYA), and Anti-War, Anti-Racism Effort
(AWARE). For more information see the
June issue of the Public i.

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HPV: Prevention of Cervical Cancer Through Vaccination

   has been hailed by gynecologists
as the most significant breakthrough
in Women’s Health of the century. The first
HPV Vaccine has been approved by the
FDA. HPV is a DNA virus that infects skin
and mucosal tissues and causes cell changes
that lead to what is known as cell proliferation
(overgrowth) and conversion to neoplastic
changes (premalignant and malignant).
These vaccines have the ability to prevent
the majority of cervical cancers, a cancer
thought to be virtually 100% preventable.
Two vaccines are: one, the newlyapproved
Merck quadrivalent vaccine Gardasil
®, targets four types of the HPV virus:
16, 18, 6, 11. It is a vaccine that gives the
individual a fairly rapid immunity to one of
four types of the HPV virus. Merck has targeted
the HPV 16 and HPV 18 viruses
because they together are the responsible for
70+% of cervical cancer cases. They included
6, 11 because they cause genital warts
and abnormal pap smears, and the vaccine
has the ability to prevent 90% of those.
There are over 100 identified types of the
HPV virus. Asecond vaccine was developed
to target only HPV 16 and 18, called Cervarix
®. FDA approval is still being sought.
The quadrivalent vaccine that has been
approved is a series of three shots, with the
second shot administered two months after
the first, followed by a final shot four
months later. The injection is not that of a
live virus, but that of the proteins of the
outer shell that are called VLPs or virus
like particles, that are perceived as the virus
by the body, and robust antibodies are
formed to that particle. With this antibody
formation, for at least the few years that the
vaccine has been studied, there is virtually
complete immunity formed against HPV.
The immunity means that persistent infections
are absent. There is almost complete
protection against the virus acquisition in
those not infected, even in those that didn’t
adhere completely to the study protocol.
Cervical cancer has been a world wide
epidemic for generations. Over 500,000
cases are diagnosed world-wide; over
250,000 women die. They die in the midst
of America too, but the numbers pale, and
fewer than 4,000 American women die each
year here of this disease. This is due to the
wide availability of pap smears, accurate
tests to diagnose the primary causative
agent, referral to gynecological treatment
and effective elimination of most pre-invasive
cervical disease. We in the United
States also do fairly well at preventing the
diseases of anal cancer, vaginal cancer, vulvar
cancers, the rare penile cancer and
laryngeal papillomous growths as well. Yet,
even with our medical system of track and
triage the burden of genital warts has continued
to grow: 20 million infected Americans,
and most unknowingly. Since only
4,000 die and 20M are infected, its not cancer
that is the real American Tragedy of the
disease here. It is the ever increasing numbers
of young women who have contracted
the virus and have to deal with the consequences:
financial, emotional, physical and
mental. Take the medical scenario of the
only treatments of pre-invasive disease
being surgical excision. There are legions of
young women who have had large areas of
the cervix permanently removed in
an attempt to ward off the
cancer. Genital warts are
treated in much the
same way, removing
the affected tissue.
Since elimination
of the wart is not
always accompanied
by elimination
of the
viral infection
causing the wart,
recurrences are
common and resistance
to treatment
common as well. Other
consequences of infection
are depression, lower sex drive,
lower self esteem, anxiety, and the issues of
“pre-existing” i.e. “not-covered” conditions
on your next insurance policy, which causes
economic burdens for those in treatment.
A focus group of girls and women with
the HPV disease might have a 17 year-old
who’s had abnormal pap smears for many
years, has had two procedures to remove the
dysplastic tissue, and is at risk for consequences
such as cervical incompetence in
pregnancy resulting in miscarriage; a 40
year-old with multiple excisional procedures
of the vulva to remove abnormal tissue
who is at risk for sexual dysfunction; a
52 year-old with cervical cancer; a 26 yearold
with multiple genital warts, who will
likely require at least 3-4 visits just to
remove this round of the infection, and a 28
year-old pregnant woman with an abnormal
pap smear. In addition to the numbers of
young women with the infection, we now
estimate 80+% of us will acquire the HPV
infection by age 50, and 20% of women
who have contracted the disease have had
only one partner. This group will ask where
they got the infection: unable to say, as tests
for HPV are so newly available we can’t say
how long an individual has harbored her
infection; how likely they will resolve the
infection. About 70% will clear sometime
after 6 months, closer to 90% of infections
clear by 2 years, and by 5 years if it’s going
to clear at all. Questions remain: when is
sex safe again and what should I tell my
partner? Disclosure issues are troublesome
since there’s no real test for the men.
Who will need the vaccine? We know
that about 50% of adolescent women will
contract HPV within three years of becoming
sexually active, so the vaccine is most
likely to help those women prior to their
debut into sexuality. Administering an STD
vaccine to a child, in a sheltered life, with
monogamous parents who married when
they were virgins, is looking to be a very
hard sell politically. No one has
an emotional problem preventing
small pox, or
mumps, or whooping
cough, or polio, but
when it comes to
the S word topic,
apparently that is
a NIMBY discussion.
Abstinence
has been
called 100%
effective 100% of
the time, and for
the straight genitalto-
genital contact disease
that is probably
true, but for variations in
sexuality, not so good. So young
people of both sexes probably need vaccinations.
The Merck vaccine has been tested
in girls and women from 9-26.
Condoms don’t work effectively to protect
against HPV disease. They aren’t used
consistently, aren’t used with appropriate
microbicial concentrations of spermicide,
and plain and simply do not cover the potential
odd wart or two that sits on the male
body instead of the shaft, or the rectum, or
the skin of the scrotum, or the rectal areas, or
the female perineal areas. Latex condoms do
help to block transmission, but if any skinto-
skin contact occurs in an affected area
transmission will occur. Suffice it to say,
even a body bag wouldn’t do it, because
slippage, breakage, and plain old holes let
alone the lax application of said bag would
not work, does not work. Now those of us in
the business do need to add they do drastically
reduce the rates of other infections:
gonorrhea, Chlamydia (a cofactor in the cervical
cancer cases), herpes (another cofactor
of cervical cancer) and the rates of HIV
infection, and by the way, are very effective
at preventing unwanted pregnancy. Yet in
the midst of an STD epidemic the Congress
has been set on legislation designed to highlight
condom’s failures rather than on strategies
that would increase their use.
Vaccines, if effective, are the only way
to go when preventing a case of a sexually
transmitted disease, or an outbreak, or an
epidemic, or a pandemic. Years ago our
CDC decided that it’s only logical, that if
gonorrhea is spread through sex, and you
find an individual with said case, treat the
partner who gave it to him or her and you’ll
stop the chain of events. With rules, regulations,
laws, troops of more-or-lessinformed
public health workers, and a
patchwork of policies and procedures,
where has it gotten us? We see pretty stable
rates of most of the common sexually transmitted
diseases within the US. In the year
2000 we had over 19 million new infections
reported. We have done a good job of
decreasing syphilis by the way, but still
HPV itself is responsible for about 50% of
new STDs. And we forge ahead with these
policies, as it still ‘seems prudent’, but
there’s not a single well done prospective
study to say this is effective.
The HPV vaccines have the ability to
prevent disease, save money, and save
lives. This is not debatable. Many of the
available vaccines we do take are for diseases
that are frankly rare; this one is not.
What is debatable is how to overcome the
significant political and social obstacles to
accepting the vaccine. Is getting vaccinated
a ticket to loose or so-called unsafe sexual
behavior? Moral extremists have been
heard to say that STDs are just payment for
out-of-wedlock sexuality. Both sexes will
need to be vaccinated, but will public distrust
of vaccine safety allow boys to be vaccinated
to prevent diseases in women? Will
vaccinated women stop getting pap smears
when we know this will not prevent every
HPV infection or every cervical cancer?
Will the vaccine reduce condom use and
inadvertently increase unwanted pregnancies?
We’ll need to be administering more
of those morning after pills if condoms
decline and that will be another topic for
future discussion.
It is unlikely that legislation is going to
rubberstamp HPV vaccination policies or
protocols. It is most likely that the vaccine’s
acceptance will rest largely with
individual providers, patient education and
discussion and maximal understanding of
the disease’s serious consequences, the
consequences of avoidance of vaccination.
Dr. Trupin is a paid research consultant
for Merck & Co., Inc. and other women’s
health companies.

Posted in Healthcare, Human Rights, Women | Leave a comment

Learning from Students who STAND to Stop Genocide in Darfur

Between 2003 and 2005, , in the Darfur region of Sudan, the
government and Janjaweed militias burned and destroyed
hundreds of rural villages, raped and assaulted thousands of
women and girls, murdered over a hundred thousand people
and caused the deaths of hundreds of thousands more via starvation
and disease. According to a survey by the Coalition for
International Justice and the World Health Org a n i z a t i o n
(WHO), 400,000 people have died since the conflict in Darfur
began in 2003. They estimate that 140,000 have been killed by
Janjaweed and government attacks and that another 250,000
have died from disease, starvation and exposure. This breaks
down to the deaths of 500 people per day or 15,000 per month.
The Sudanese government’s campaign forced more than
two million Darfurians from their homes into the inhospitable
desert without food, water, or any other way to sustain life. As
of 2006, some 1.8 million live in camps in Darfur and approximately
220,000 have fled to Chad, where they struggle to
survive in camps that are repeatedly attacked by militias and
around which women are raped as they look for essential firewood.
In addition to the people displaced by the conflict, at
least 1.5 million other people need some form of food assistance
because the conflict has destroyed the local economy,
markets, and trade in Darfur. Just like the genocide in Rwanda,
the slaughter in the Balkans, and the Holocaust, this crisis
has received little attention in the media and even less international
attention.
Only 7,000 African Union troops have been deployed to
keep the peace, and they do not have a mission to protect
civilians. This inexperienced, under-funded and under-staffed
force has been only minimally effective in creating security in
the region and militias continue to attack refugee camps and
aid workers. Recent peace talks among the Sudanese government
and the rebel groups they seek to destroy, the UN
promise to send troops in 2007, and international awareness
events offer hope to an end of the conflict. However, immediate
NATO peacekeeping troops and funding are needed to
secure the region and to ensure humanitarian aid to the victims
of the crisis.
On April 30, 2006, with the stark white U.S. Capitol
Building as a backdrop to a simple stage, over sixty speakers
and performers, including directors of activist organizations,
religious leaders from many faiths, political leaders, survivors
of genocide, country music stars, sports stars and one
movie star, created a spectacle to end the worst human rights
crisis of the new millennium. As I stood on tip-toes in my
bright green “Stop Genocide in Sudan” T-shirt trying to see
Senator Barack Obama, Ellie Weisel, Al Sharpton, Pulitzerprize
winning author Samantha Power, Big & Rich, George
Clooney and other presenters on the stage and jumbo screen,
I became frustrated with trying to see over the large crowd.
Before expressing internal complaint, however, I remembered
what a wonderful problem a crowd is for as an activist.
On a sunny afternoon on the last day of April, I was one
among tens of thousands of people on the lawn of the U.S.
Capitol demanding that it be the last day that the U.S. and
international community ignore the Darfur human rights crisis.
Chanting “Never again”, “Not on our watch”, and “You
are not alone,” my voice joined the thousands of others in
Washington D.C. and at rallies across the country demanding
intervention to end the genocide in Darfur that had been raging
for three years.
The Save Darfur Coalition, a coalition of over 100 humanitarian
and human rights organizations, coordinated the rally.
As members of Save Darfur, Students Taking Action Now:
Darfur (STAND) and the Genocide Intervention Network
(GI-Net) are two student-based national organizations that
brought over 800 students from around the nation to the rally
and hosted a weekend, April 28-30, of student activism for
Darfur. Approximately 25 students from the University of
Illinois along with 80 from Northwestern University traveled
16 hours on a bus from Evanston, Illinois to Washington D.C.
to attend the weekend events, lobbying their congressional
and senate representatives on Friday, attending informational
workshops on Saturday, and rallying on Sunday.
Student volunteers coordinated the events. They set up
lobbying appointments, organized meeting space for workshops
at George Washington University and found housing
for 800 visiting students. Volunteers also created, compiled
and distributed to each workshop participant a packet of
information for lobbying and a binder with tips on how to
organize summer action. These student volunteers were able
to produce a professional and well-attended conference and
to mobilize a coordinated lobbying effort and provided tools
for continued activism.
GI-Net and STAND offered a brief training and reference
packet to each student who had a scheduled meeting with
their representative. The lobby packet included information
on the background and goals of STAND and GI-Net, updates
on the current situation in Darfur, and current needs or
requests to make of government representatives. STAND and
GI-Net officers provided lobbying training before appointments,
including review of the meeting outline, etiquette and
role plays of both a successful and an ineffective meeting.
They provided a unified message and requests of the representatives
including sponsorship of House Resolution 723,
support of NATO enforcement of a no-fly zone over Darfur
and deployment of on-the-ground troops, and funding for
peacekeeping in Sudan.
After a day of lobbying, STAND and GI-Net gathered
workshop participants for a large morning meeting and an
afternoon of brainstorming and guidance in regional groupings.
At the morning meeting, Samantha Power, Pulitzer prize
winner for A Problem from Hell: America and the Age of
Genocide, offered encouraging words to student activists:
“You are always going to be seeing what efforts you are
not achieving,” said Power. “There is hope in what you’re
doing…always remember that fewer people are dying than
there would be if you were doing nothing.”
After Powers’s lecture, participants broke up into groups by
region of the country. They brainstormed on how to expand
activism beyond the campus environment to their local communities
in the summer. These meetings and a binder with reference
material covered three steps – recruit, meet and take action
– and provided resources on how to accomplish those steps.
Despite being organized by all student volunteers, the
weekend had a strong impact. Lobbying resulted in the Senate’s
approval of the requested $173 million in emergency
funding for peacekeeping in Darfur. Also, the Sunday rally
generated 850 news segments on U.S. and Canadian radio
and TV and hundreds more in the print media.
Peace groups can learn not only from the well-organized
lobbying and conference of Darfur student activists, but also
from the foundations and regular practices that support them.
STAND was a single campus student organization that was
founded at Georgetown in September 2004. There are now
over 190 chapters at universities across the country, including
Action Darfur at the University of Illinois. The group has
grown both through grassroots contacts and the resources
they make publicly available.
STAND has an executive committee and regional coordinators
that contact and provide resources to the local chapters.
The organization has a user-friendly website, standnow.
org. On the new chapter page of the website, STAND
emphasizes that if you can provide the people, they will provide
the resources and tools for activism. STAND also gives
step-by-step instructions on sponsoring events and gaining
public support and media access. For each event, STAND
gives guidelines on offering clear information about Darfur
and national awareness campaigns. They also provide a
media kit, including sample press releases and alerts, which
local groups can use to gain media attention. STAND provides
all the tools necessary for successful grassroots campaigns.
It maximizes the potential of individual groups, but
also unifies these groups to have one strong message. STAND is also an example for other
grassroots movements on how to effectively
cooperate with other organizations.
STAND offers links to other groups on its
website and promotes other groups’
activities. It also encourages its chapters
to seek support and work cooperatively
with other human rights organizations.
The Awareness Week Events at the University
of Illinois in February were coordinated
by Action Darfur but were sponsored
by eleven other student organizations.
STAND and GI-Net also
announced during their D.C. activism
weekend that they will combine their
forces to create one long-standing genocide
awareness and intervention organization
that will have a continuing presence
beyond the Darfur crisis.
You can support the awareness work
of these students by staying updated on
news about the Darfur crisis and spreading
that information to friends and family.
You also can contact Rep. Timothy Johnson
and Senators Barack Obama and Dick
Durbin to tell them to support funding for
the peacekeeping missions in Sudan with
at least $700 million in 2007 and to pressure
for NATO enforcement of a no-fly
zone and deployment of peacekeeping
troops. Finally, you can send an on-line
postcard to President Bush at
w w w. s a v e d a r f u r. o rg to urge him to live
up to his promise of “Not on my watch.”

Posted in Uncategorized | Leave a comment

Support our Troops! Provide Healthcare When They Get Home

In case you haven’t been keeping track, ately, the latest Department of Defense figures
indicate that the U.S. is quickly approaching
2,500 soldier deaths and 18,000 casualties in
Iraq. While anti-war activists have been vigilant
about exposing the lies that led us into this
war and demanding “troops home now,” we have not been
attentive enough to the plight of veterans, many of whom lack
access to proper healthcare. Supporting our troops should mean
more than affixing a bumper-sticker saying so; it should mean
paying attention to casualties and pressuring the Bush administration
to support the Veteran’s Administration (VA).
Vietnam Veterans Against the War (VVAW) and Iraq Veterans
Against the War (IVAW) released a stunning report last year
documenting the shortage of healthcare for veterans, arguing
that 1/3 of veterans under 25 years of age lack health insurance.
Moreover, according to United Press International, “Iraq veterans
are beginning to show up at homeless shelters around the
country.” The rate of amputation is twice as high as it was in
WWI and WWII, and the rates of Traumatic Brain Injury, Post
Traumatic Stress Disorder, and Depleted-Uranium-related illness
surpass those of all other wars.
The VVAW and IVAW “work with veterans every day who
deal with the painful realities of a healthcare system that rejects
them because it is under-funded, understaffed and most importantly
because it is being broken down and torn apart by a government
who seems to value their death more than their lives.”
As the VAbudget is cut and healthcare costs rise, it is becoming
more and more difficult for veterans to access health care. In
the FY 2006 budget, for example, co-pays doubled and annual
enrollment fees rose to $250. In 2004, Knight Ridder found that
approximately 572,000 eligible veterans were not accessing
services. As the war in Iraq drags on, veterans’ medical issues
are becoming more profound and complex, and at the same
time the VA system is facing a serious crisis.
Thanks to medical and technological advances, fewer soldiers
are dying in the current war compared to previous ones.
However, many suffer massive injuries that will affect them for
the rest of their lives. In addition to the increased numbers of
amputations and mental health disorders, another unique problem
for many Iraq veterans is TBI. In fact, TBI is emerging as
“the signature injury of the Iraq war,” with anywhere between
25% and 60% of bomb-blast survivors suffering from a condition
that impairs cognitive functioning and often goes hand-inhand
with PTSD.
Only four VA facilities around the country are speciallyequipped
to handle TBI cases, and in some cases the symptoms
(including headaches, light and noise sensitivity, memory loss,
anxiety, depression, and difficulty solving problems) are so
mild that it goes undiagnosed, much like “shaken-baby syndrome.”
Permanent brain damage results about half of the time,
and in the most extreme cases soldiers must learn to walk, talk,
and use the toilet all over again.
Rocket-propelled grenades, improved explosive devices,
mortars, and land mines are common causes of U.S. injuries
and deaths in Iraq, all of them tending to cause head traumas
that would have killed soldiers in previous wars. Although body
armor and helmets are keeping more soldiers alive in such
blasts, TBI leaves no physical traces and is sometimes overlooked.
As the Defense and Veterans Brain Injury Center, supported
by the Department of Defense, notes, mild brain injuries
are often dismissed as “getting your bell rung.” Most Iraq war
TBI victims are 21 years of age.
In the Fall 2005 issue of The Ve t e r a n, Ray Parrish, the
V VAW ’s military counselor, documented the difficulties veterans face in making a PTSD claim. In order to
satisfy what he calls “the VA’s obsessive compulsion
with documentation,” veterans are
forced to jump through bureaucratic hoops
and endless technicalities to receive care.
This, of course, either deters them from seeking
help or delays the process until it is sometimes
too late.
For example, “being in a war isn’t the same
as being ‘engaged in combat’ for the VA,” so
those suffering from mental disorders due to a
service-related incident–but not necessarily
one that the military considers “in combat”—
must wade through the legalese of getting
notarized ‘buddy statements’ to prove that the
stressor did, in fact, occur. If the veteran fails
to go through the complicated series of
appeals, examinations, and hearings, or fails to
do so within a certain amount of time, the
health benefits are cut.
Excerpted in a VVAW and IVAW report
entitled From Vietnam to Iraq: Ignoring the
Veteran Health Care Crisis is a letter sent to
Senator Cornyn (R-TX) from Jason Thelen, a
soldier who served in Sadr City. Thelen argues
that “the VA system and military doctors
refuse to recognize the damage that the war in
Iraq is causing,” and he tells the stories of three
of his fellow soldiers that suffered from PTSD
after the war and failed to get adequate treatment.
Most shocking is that of “Arthur V.,”
who faced serious problems re-adjusting to
civilian life after serving and earning a Bronze
Star in Iraq: “Alcohol, PTSD, and family problems
worsened, and nothing helped. In the
summer of 2004, he donned his formal Army
uniform, placed a noose around his neck, and
stepped from a bridge, killing himself.” Thelen
tells of others whose physical injuries and psychological
problems have gone undiagnosed;
in one case, a troubled soldier was sent on a
dangerous mission as “punishment.”
Finally, whereas TBI and PTSD are becoming
more recognized as legitimate casualties of
war, a third factor, DU, carries a great deal of
controversy. A veteran of the Gulf War and
Kosovo intervention with whom I correspond
captured the attitude when he recently
remarked, “I never believed the DU stuff.”
The effects of DU are only beginning to be
understood, for DU itself is only very mildly
radioactive and was previously believed to
cause no harm as long as it stays outside of the
human body. During the first Gulf War, DU
was used to tip bullets, partially as a way to get
rid of toxic waste. However, upon impact, it
begins to burn and release dust-like particles of
highly-radioactive U-238 into the air, which
can in turn be inhaled. Some believe DU to be
the cause of the mysterious “Gulf War Sickness,”
which has caused kidney damage, birth
defects, cancers, neurological problems, and
even death for nearly one out of seven Gulf
War veterans.
The U.S. continues to produce and use DU
munitions, the long-term effect of which for
soldiers and civilians alike could be devastating.
Exact estimates vary, but the consensus is
that the use of DU during the Gulf War pales in
comparison to the current Iraq war.
Sources: Iraq Coalition Casualty Count
( h t t p : / / i c a s u a l t i e s . o rg); V VAW ( w w w. v v a w
.org); IVAW (www.ivaw.org); TrapRock Peace
Center (www.traprockpeace.org); Robina Riccitiello,
“Casualty of War,” Newsweek (web
exclusive, 17 March 2006): http://www.
m s n b c . m s n . c o m / i d / 11 8 8 2 1 6 4 / s i t e / n e w s w e e k . ;
DVBIC (www.dvbic.org)

Posted in Healthcare, Human Rights, Veterans | Leave a comment

Peoria Citizens Score Public Health Victory –And Call for Our Help

When my family moved to Peoria from Urbana
more than 8 years ago, we suffered some culture
shock. We’d left a fairly progressive community
and a wide circle of activist friends to move to a
city where the culture was much more conservative
and definitely more passive; the first
demonstration we saw covered on Peoria television
was a group of people rallying to get a
Hooter’s on the riverfront. But where Urbana’s
physical charms are subtle, Peoria’s geological
variety was a pleasant change.
That fall I would often find myself driving on
the western edge of town on a two-lane road that
descends from the neighborhoods in the hills lining
the Illinois River, toward the cornfields
beyond. The hills, the trees in their autumn colors,
the blue sky over the cornfields all helped compensate
a bit for what we’d left behind. To w a r d
the bottomof the hill, an access road threads back
uphill, marked by a sign reading “Environmental
Management Services.” In my bucolic daze I
thought of recycling and other green things.
Who knew that the facility hidden at the end
of that access road, behind that ludicrously
euphemistic sign, was actually a hazardous
waste landfill? As it turns out, almost nobody.
Peoria Disposal Company’s No.1 landfill has
accepted millions of tons of hazardous waste at
this facility since the 1970s, and most Peorians
would have remained ignorant of this situation
had the landfill not approached capacity. With
closure looming within in a few years, Peoria
Disposal Company (PDC) began the process of
applying to expand the landfill by over 8 acres
and 45 vertical feet, which would allow dumping
to continue for another 15 years.
The first to raise the alarm, a year or more
ago, were groups like Heart of Illinois Sierra
Club and River Rescue. Still, the news didn’t
seem to travel much beyond those who were
already active in environmental efforts–a pretty
small community. But when PDC filed its application
in late 2005 and made the requisite public
notification (a tiny display ad in the Peoria
Journal Star), the cat was out of the bag and
public opposition quickly gathered momentum.
When people started asking questions about
what was being dumped on the edge of town,
what they learned literally frightened them into
action. Under its current permit, PDC No.1
accepts primarily waste containing heavy metals
like lead, mercury, cadmium and chromium. It
also accepts Manufactured Gas Plant (MGP)
remediation wastes: soil removed from the former
sites of plants that produced fuel gas from
coal. A partial list of the
toxic materials often
found in these soils
includes volatile and
semivolatile org a n i c
compounds (VOCs and
SVOCs), benzene,
polynuclear aromatic
hydrocarbons (PA H s ) ,
and metals like arsenic,
chromium, lead, copper,
nickel and zinc. PDC is
licensed to accept some
wastes that it currently
does not (such as PCBs);
PDC alone decides what waste to accept. The
substances being dumped at PDC No.1 have
been associated with cancer, birth defects, and
mental retardation, to name just a few of the
possible health hazards.
H o w e v e r, this site has been operating since at
least the 1970s, well before current regulations
were put into place. It’s not entirely clear what
might be buried in the older parts of the landfill.
Of particular concern is the “barrel trench,”
where in the 1970s steel drums containing various
solid and liquid hazardous materials were
buried with only a non-compacted clay “liner”.
In 1983, an EPA report noted “contaminants
found puddled on soil from leaking drums.”
While there are enough concerns about this
landfill to fill a day-long seminar, possibly the
most serious and obvious problem – and one relevant
to Urbana-Champaign residents – is that it
sits on top of the Sankoty Aquifer. Landfill
defenders have made a great deal of noise about
the fact that the landfill sits above the Shelbyville
Outwash, not the Sankoty itself. The
Shelbyville Outwash is a finger, if you will, on
the hand of the Sankoty Aquifer. PDC No.1 sits
right at the knuckle where they join–upstream.
To suggest that the landfill does not endanger
the Sankoty is a bit like saying if we dump
something into the Mississippi at New Orleans,
it won’t get into the Gulf.
The Sankoty Aquifer underlies 750 square
miles of Illinois. It furnishes drinking water to
264,000 people in 39 communities in the tricounty
area alone (Peoria,
Tazewell, and Wo o d f o r d
counties). But the Sankoty
is not a discrete entity. It is
hydraulically connected,
and mixes water, with the
Mahomet A q u i f e r.
Urbana-Champaign draws
water from the Mahomet.
PDC claims that we
don’t have to worry about
groundwater contamination
because the liner system
will last for 500
years. Even if that were
true, heavy metals last forever–they do not
degrade–and I daresay they will be as poisonous
to people in 2506 as they are now. The truth is,
all landfills leak. Liner systems consist of compacted
clay (which is permeable) and
HDPE–plastic–sheeting. The plastic sheeting is
permeable even when intact; liners have pinholes
in them when they are installed; and they
all degrade and crack eventually. Landfills a lot
younger than 500 years are already leaking. In
fact, evidence suggests that PDC No.1 is already
leaking. PDC’s assurances regarding their liner
system don’t hold water, let alone toxic waste.
There are other issues of concern to people
outside of Peoria County. Consider the fact that
only around 10% of the waste comes from Peoria
County. Most of it comes from out of state,
including Indiana and Ohio, and comes to Peoria
in trucks over the highways. One could reasonably
assume that hazardous materials are
being trucked down I-74 to Peoria, and spills
can happen anywhere.
As long as landfilling hazardous waste is
cheap and convenient, industry will continue to
produce it. Stopping the expansion of PDC No.1
will reduce the options available to producers of
toxic waste, making the development of alternative
processes more attractive. Clearly, the continued
operation of PDC’s hazardous waste
landfill endangers more than just Peoria residents;
stopping the expansion and closing the
landfill will benefit us all.
Thanks to a grassroots movement the likes of
which many longtime Peoria residents say they
have never seen – petition, yard sign and billboard
campaigns, door-to-door canvassing, letters
to the local paper and untold numbers of
phone calls, emails and old-fashioned letters to
County Board members organized by the local
Sierra Club, River Rescue, Citizens for our
Environment and Peoria Families Against Toxic
Waste – on May 3 the Peoria County Board
voted 12-6 to deny PDC’s expansion request.
We have cleared one major hurdle, but our
work has just begun. We now have to muster our
resources – physical, psychic, and financial – to
oppose PDC’s almost certain appeal of the
board’s decision to the Illinois Pollution Control
Board. In any case, millions of tons of hazardous
waste still sit above our aquifer, within 3
miles of 53,000 residents and directly upwind of
some of the most densely populated neighborhoods
in Peoria. Our task now is to do what is
necessary to protect not just our community but
others across central Illinois.
You may feel removed from this problem,
but truly we are all connected. The Illinois EPA
needs to know how far the effects of this decision
extend, and how great is the good – or the
harm – they have the opportunity to do. Please
contact Director Douglas P. Scott of the Illinois
EPA at PO Box 19276, Springfield, IL 62794 or
call 217/782-3397 and let him know that PDC
No. 1 needs to be cleaned up, not expanded.
Visit www.notoxicwaste.org to get the latest
information and find out how to help.

Posted in Healthcare | Leave a comment

Stigma from the Inside Out

There are levels of severity to mental illness in addition
to its different manifestations. In this article I will attempt
to convey what I have seen stigma do to people after they
have been diagnosed. I have chosen bipolar disorder
because it’s one through which I’ve seen people robbed of
their personalities, not only by the stigma of others but by
themselves also.
The extreme low of this illness can be dangerous. The
depression is overwhelming and can be devastating. Apervasive
feeling of doom convinces the patient that the only
way out is suicide. Every task takes incredible effort, as
though one is literally wading in the mud.
At the extreme high end, people report feeling invincible,
highly aware, and energetic for days. Fun-loving behaviors
can get out of control. People report staying up for many
nights to complete a project. Ideas that friends think are outrageous
make perfect sense to a bipolar person. Some people
spend money uncontrollably and neglect their bills.
Imagine that you start to have bipolar symptoms and
before you know it, you hit either of these extremes. Your
life is out of control, you are suicidal, or both. You are
urged to get treatment. People that love you are worried and
want you to find out what the problem is. Perhaps you have
broken the law and are ordered to get an evaluation by the
court. Maybe the night you took the pills, someone found
you and rushed you to the hospital to save your life. Whatever
the case, you get a brand new label: Bipolar.
Perhaps you suddenly realize you’re not the loser you
thought you were. You’re not lazy stupid, senseless, selfish
or any of the names and labels that have already been handed
to you. Maybe you thought that your character flaws
were the reason things were never steady. But no – now you
know its not you. It’s the disease. What a relief…well,
maybe for a little while.
Time for medication. Many people require meds to manage
their moods and actions. Some say these medications
make them feel dull, less creative and more boring. But for
many, medication can work well and enable them to lead
what can be considered to be a normal life.
Now let’s look at the issue of stigma from a more personal
point of viewa bit further.You have been told thatmany of
your feelings and actions are a result of your disease. Soon
you begin to wonder which is you and which is the disease.
Are you in a good mood today or are you at the beginning of
an extreme high? That occasional urge to be irreverent – is
this your fun spirit or the illness? Are you irritable today
because you are overworked, or is it your illness?
You find yourself yelling at your children and maybe
your wife, who asks if you forgot to take your medicines.
When you tell someone that you are upset with them, they
ask the same thing. Suddenly you are no longer able to have
legitimate complaints, feelings and urges, or make mistakes
like everyone else; they are always in questioned or minimized
because they can be attributed to your “disease.” You
now look to others to see how to act and validate your feelings.
And god forbid that you show strong emotion!
Have you ever spent too much money? To some, that’s
simply “retail therapy.” For a person suffering from bipolar
disorder, this is part of your craziness and you should be
concerned.
Have you ever stayed up all night working on a project?
That’s enthusiasm and ambition; you should be proud of
yourself! A person with bipolar may fear another high followed
by a crash.
Have you ever gotten angry with a sales clerk or lost
your temper at work? Well, don’t we all? As a person with
b i p o l a r, you might want to consider a medication adjustm
e n t .
Have you ever had a boss, doctor or a family member do
or say something nasty to you when no one else is around?
You complain. You deserve to be heard and you expect an
apology.A person with a bipolar might be accused of blowing
things out of proportion, of having false perceptions, or
making false accusations. I have personally seen complaints
thrown out without any investigation, simply
because the plaintiff had a mental illness. Who are people
going to believe – the woman that is bipolar or the man in
power who she claims assaulted her?
This is vulnerability. This is a loss of personal power.
This is stigma, a constant companion of those diagnosed
with a mental disorder.

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Reducing Stigma Through Peer Support Group

The phone rang at midnight, and Sten
Johensen answered it, with a good idea of
who it might be.At the other end of the line, a
familiar voice was frantic and crying. “They
w o n ’t give me my meds!” It was Sten’s good
friend, whom we will call Sue, who had had
shoulder surgery that day. Sten had been with
her at the hospital before the operation, after
her recovery, and in the evening for the nursing
change at 8:00 PM. He had accompanied
her all day not only as a friend, but also as her
advocate, to assure that she would be given
her psychiatric medications without interruption
due to oversight or negligence. Sue was
on a strict regimen of medication for her bipolar
disorder, post traumatic stress disorder,
and dissociative identity disorder. At each
step of the pre- and post-surgical procedures,
Sue and Sten had asked for assurance that the
meds would be administered at the designated
times, as prescribed by Sue’s psychiatrist.
They spoke with the night nurse to make her
aware of the situation.
During Sue’s midnight phone call, that
same nurse said the medications weren’t listed
for Sue, nor had then been provided, and
she couldn’t give them anyway without the
doctor’s orders. Sten then called a night-duty
psychiatric nurse at the psychiatric ward
where Sue had often been treated. The nurse
there called Sue’s psychiatrist at home (at 1
AM), who then called the hospital staff to
demand the medications for Sue.
Sue’s pleas to the nurses on duty had
gone unheeded. The reason? Stigma.
Sten knows all too well about stigma and
what it can do to people who have emotional
difficulties or disabilities. He is a facilitator
for the Depression and Bipolar Support
Alliance of Urbana Champaign. DBSA is a
nationwide network of peer support groups
for people who suffer from depression or
Bipolar Disorder. The local group meets
twice weekly and the members share common
experiences, problems and possible
solutions. Many of the issues discussed
involve the ubiquitous, subtle and not-sosubtle
forms of stigma. I sat down to talk
with Sten about some of the things the group
can do for its members.
“Family is not always the best support”,
he said. “Sometimes family
relationships carry with them
baggage, which can actually
add to the problem.” In such
cases, a peer group can provide
an understanding
refuge. Many group members
show obvious distress
after spending time with
their families and sometimes after a doctor’s
appointment.
One might wonder how doctors could be a
source of distress when in fact they are supposed
to be the source of healing. Sten notes
that some DBSA members often find their
doctors to be impersonal in nature, condescending
or unwilling to listen. He reports
that many members come back from appointments
feeling deflated and beaten down.
They feel they are not taken seriously and if
they have a complaint, it is just attributed to
their emotional condition. This is a big area
of vulnerability where stigma is the culprit.
So, if a patient is having difficulties with
a doctor, why not visit another doctor? This
would be simple if everyone had a health
care plan that treated mental illness the same
as physical illness. This, however is rare,
even with the best of plans. Insurance companies
often dictate which doctors a patient
can see and which medications they will pay
for as well as restrict the number of therapy
sessions available per year. In many cases,
insurance itself is an issue. Some DBSA
members are on public aid, while some have
no coverage at all.
In regards to treatment, there are many
breakthrough therapies and medications to
treat depression, but only 15.3% of the people
with mental illness in the United States get
what would be described as adequate treatment
(C h a rtbook on Mental Health, 2006)
There is treatment available for low
income persons but there is usually a waiting
list. Some members of DBSA have had to
wait up to 6 weeks to see a doctor. Unfortunately,
depression can be a downward spiral,
and often by the time a person
seeks help or someone
assists them, they may be in
acute psychological distress.
For someone clinically
depressed, a day can seem
like a lifetime, let alone
waiting weeks for the next
available appointment.
Many people end up in the emergency room
with a crisis because of this lack of immediate
support.
Sten has found that some doctors in the
community will help out in an emergency
situation. He himself has also escorted many
patients to the hospital.
In the case of physical disability, it may
take months or years for someone to acquire a
rightful disability claim.Most are turned down
2 or 3 times before they become eligible. T h i s
is especially true when it is a first time emerg
e n c y. Sten told me that many DBSA m e mbers
have had to hire lawyers to get a fair
shake at disability. One of the benefits of the
peer group is that members can advise each
other on good disability lawyers in town.
In addition to the difficulties in obtaining
treatment, a client may also face stigma during
treatment. If a person is on public assistance
and has made it through the wait list, she will
then be assigned a doctor.
Unfortunately, Sten has found that DBSA
members commonly have many problems
with their doctors. In many cases a member
will tell the doctor that their medication is
producing side affects or not working at all,
only to be completely dismissed. Advocates
have tried to go with these clients to give
their complaints credibility but doctors will
often, and inexplicably keep these people
from joining them in the office.
If a client is unhappy with her doctor, she
may file a complaint, but it takes another 6
weeks to get a different doctor who still may
not be competent. This can be devastating if
medication side effects are a problem or the
medications are not helping at all. To complicate
matters, many medications for
depression take weeks to take eff e c t .
Although most people in the mental health
community work very hard to meet the needs
of the clients, the uncaring nature of some of
the doctors and the system itself can be
harmful to people with depression.
F o r t u n a t e l y, there is some good news.
Sten sees the emergence of a new way of
treatment coming from the certain psychiatrists
who do not base their practice on autocratic
ideals. They listen when a client is concerned
and work with the individual to
improve the effects of treatment. I asked Sten
how many of these doctors were available
and although he claims no statistics, from
what he has heard from members, about 15%
of them have this type of treatment.
There is a long road ahead and a great need
for better mental health care and delivery in
this country. Issues of stigma have to be
addressed as they are linked to the illness
itself.With so many medications and therapies
available, acquiring good treatment and being
treated with respect are the main issues at
hand.With improvements in these areas, combined
with peer groups willing to advocate for
each other, we may be on the road to recovery.

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Testimony to the Adequate Health Care Task Force

I had the opportunity to address Illinois’ Ade –
quate Health Care Task Force on February
15, 2006, when they visited the 15th Congres –
sional District. My remarks were received
with boisterous applause. Here’s the text of
my testimony:
I appreciate the opportunity to address the
Adequate Health Care Task Force today.
My name is David Gill, and I’m an Emergency Department
physician from Clinton, Illinois. I’m also past president
of the Board of Directors of Dr. John Warner Hospital in Clinton,
and thus I’ve witnessed the difficulties inherent in health
care financing from more than one perspective.
As a 15-year member of Physicians for a National Health
Program, I’ve long been convinced that America desperately
needs a Single-Payer National Healthcare Plan, for the wellbeing
of both our citizens and our large and small businesses.
I’m currently running, for the second time, for Illinois’ 15th
District seat in the U.S. House of Representatives. But until I
can convince a majority of 15th District voters to send me to
Washington, where I intend to be a leader in bringing adequate
health care to all Americans, I feel that Illinois’ Health
Care Justice Act is an appropriate and necessary step in the
right direction.
For more than twenty years, I’ve borne witness to the lunacy
and injustice of health care financing here in Illinois. I’ve
watched as Illinois’ citizens – young, old, rich, poor, black,
white – have suffered and died, because of the failure of our
elected leaders to implement a health care plan which provides
access to needed care. These same citizens would be alive and
well today had they lived in Japan, Germany, Canada, Switzerland,
or any other industrialized country in the world.
Our Illinois businesses, large and small, now compete in a
global economy; but we force them to compete on a playing
field which is far from level, as companies from all those
other countries have the benefit of universal health care plans.
For this reason, American companies will eagerly flock to the
first states that implement adequate health care for all.
Within the past month, I watched a young man less than 40
years old die of a heart attack, leaving behind a wife and two
young children. He worked as a full-time househusband and
f a t h e r, while his wife worked full-time outside their household.
He experienced mild, intermittent chest pain for one week, but,
because he was unable to afford health insurance, he ignored
his wife’s pleas to have his chest pain evaluated. And as so
often happens, over and over and over again, he arrived at my
E m e rgency Department too late. His childrenwill now grow up
without their father, leaving them with broken hearts and
putting them at increased risk for a host of negative social consequences.
As a society, we fail such children each day that we
stand by and fail to implement universal health care.

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Healthcare Justice for Illinois

After over a decade in which it was considered
a third rail of politics, and despite all
the lobbying on the part of insurance and
pharmaceutical industries, health care reform
is again making political waves as we realize
that our health care system is fundamentally
flawed. This is not particularly surprising,
withAmericans experiencing premium hikes
year after year for less comprehensive coverage,
the salaries of top executives in the
insurance industry growing exponentially,
and the ranks of un- and underinsured U.S
residents continuing its climb. Across the
c o u n t r y, state legislatures are being pressured
to revive the health care debate and taking
steps towards addressing this large and
growing crisis, and Illinois is no exception.
On any given day, approximately 1.8
million people are uninsured in Illinois
alone. However, this US Census figure
doesn’t take into account those that are
uninsured for only a portion of the calendar
year. According to a 2004 Families USA
report, 3.6 Illinoisans, or nearly one in
three, were uninsured for all or part of 2003
and 2004. Of these, 76% were workers or
members of working families, as a growing
number of employers in Illinois cannot
afford to offer insurance to their workers. In
fact, 53% of workers in 2001 were not
offered insurance, whether due to small
businesses not being able to afford the rising
costs of health care, or to businesses in
general having to cope in an increasingly
competitive and globalized market.
Beyond the statistics are the stories of
people whose lives have been devastated by
a health care system that has failed them.
Experiences of individuals and working families
being put into coverage plans including
health savings accounts and carved up insurance
pools, designed to provide those
enrolled with more individual “control” of
their healthcare that leaves them in financial
crises. Stories of being dropped from insurance
coverage in the middle of radiation
treatment or chemotherapy and not being
able to obtain coverage without paying astronomical
premiums and deductibles due to a
pre-existing condition, if offered coverage at
all. Or the accounts of the growing ranks of
underinsured with ‘bare bones’ policies that
often will not cover unexpected medical
needs or basic preventative care. Te s t i m o n i e s
such as these and themany,many others like
them are demonstrative of a fundamental
problem with our health care system that
often values profits over health and exclusion
over dignity.
While most would agree, regardless of
political persuasion or ideological worldview,
that there is a systemic problem with
our current health care system, few can
agree on a solution that can address these
issues. With the current political climate in
Washington, health care advocates are
increasingly looking to the states to implement
comprehensive reform, as the possibility
of federal action appears unlikely for
now. Illinois is one of a handful of states
that health care activists are watching closely,
particularly the process set in motion by
a little-known piece of legislation known as
the Health Care Justice Act, passed by the
General Assembly in 2004 and sponsored
by State Rep. William Delgado and then-
State Sen. Barack Obama.
The Act began a dialogue in Illinois that
brought the key stakeholders in the health
care system together: consumers, grassroots
advocacy organizations, providers, labor
unions, hospitals, faith communities, and
even the insurance industry. This dialogue
began through the formation of the Adequate
Health Care Taskforce, appointed by
the majority and minority leaders in both
the Illinois House and Senate, and by Governor
Blagojevich. The Taskforce was
charged with holding public hearings in
each Congressional District in the state to
get input from Illinoisans about their experiences
with the health care system, both
positive and negative, and suggestions for
reform directions. This provision effectively
creates the space for a participatory
process, allowing residents of Illinois and
the key stakeholders in the health care system
to have their concerns heard, rather
than mandating an outcome that may not
meet the needs of Illinois’ current situation.
Over 2000 Illinois residents turned out for
these hearings and gave a wide range of testimony.
The hearing for the 15th District
was held on February 15 in Champaign and
drew over 100 local and regional attendees
addressing a variety of issues, including the
importance of mental and oral health services,
the impact of health care at the bargaining
table, and increasing Emergency
Room utilization by the uninsured as their
only route to medical access.
At this point, after the public hearings,
the Taskforce is in the process of choosing
plans that will bemodeled and quantified for
expansions in coverage, impacts on quality
of care received by consumers, and options
for payment including short-term cost and
long-term savings, among other dimensions
of analysis. Plans to be modeled range from
a pooled risk, shared responsibility singlepayer
system to the further commodification
of health care under bargain shopping,
stripped down health savings accounts.
After this has been completed, the Ta s k f o r c e
is to submit a plan, or multiple plans, to the
GeneralAssembly by October 1, 2006, to be
acted upon by December 31, 2006 and with
an implementation date no later than July 1,
2007. The only criteria the Taskforce has to
judge such plans are the principles articulated
in the legislation, including access to a
range of preventative, acute, and long-term
care services; portability of coverage;
regional and local consumer participation;
cost-containment measures; and aff o r d a b l e
coverage options for the small business market,
in addition to others.
The Campaign for Better Health Care
was a main mover of the Health Care Justice
Act and is the largest grassroots health care
advocacy coalition in Illinois, representing
over 300 organizations and thousands of
consumers, and raising the medical, economic,
and moral imperatives of health care
access and aff o r d a b i l i t y. The Campaign has
been organizing around the public hearings
throughout Illinois to make sure that individuals
and organizations are made aware of
this historic public debate, and that consumers
are able to participate in this process.
As we move into this second phase, the
Campaign is continuing its efforts to raise
awareness of this dialogue and to empower
consumers to advocate for justice in health
care. This will culminate in dozens of
actions across the state in September and
O c t o b e r, urging the Taskforce to recommend,
and the General Assembly to enact,
comprehensive health care reform. This six
week push will kick off with the Health Care
Sabbath, in which over 100 communities of
faith will participate in discussing just and
compassionate health care. The effort will
also include a variety of other actions to
ensure that our elected officials know the
Health Care Justice Act needs to be a top
issue in the upcoming election. The Campaign
is working both within the Ta s k f o r c e
and with our coalition partners to ensure that
the final plan operates on the principle
Everybody In, Nobody Out. If you want to
become involved in working towards qualit
y, accessible, affordable health care for all
Illinois residents with the Campaign, visit
w w w. c b h c o n l i n e . o rg/hcjc or email kpowe
l l @ c b h c o n l i n e . o rg for more information.

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Five Deaths at County Jail

With the death of Quentin Larry on
May 28, now five inmates have died in the
Champaign County Jail over a three year
period. Individuals should not die in police
custody – even if they are drug addicts. Citizens
must demand an independent investigation
into all five of these incidents.
Deaths in the local jails became an issue
in 2004 when three suicides occurred within
six months at the county jail. In the average
year, eight to nine jail suicides are documented
in Illinois. In 2004, jail suicides in
Champaign County represented one third of
the total in the state.
The third suicide was particularly suspicious.
Police claimed Joseph Beaver
hanged himself from a telephone cord in the
booking area.
Public outcry prompted Sheriff Dan
Walsh to hire a mental health counselor and
take precautionary measures in the downtown
and satellite jails. Yet it is clear that not
enough has been done.
In July 2005, one man died in police custody
of natural causes. This most recent
incident involving Quentin Larry, which the
police are calling “drug related,” makes five
deaths of individuals in police custody.
In November 2005, a rogue police officer
was exposed in the local jail. Serg e a n t
William Alan Myers is currently charged
with aggravated battery and obstructrion of
justice for using a taser on an imate. Myers
tased a restrained man four times in an
empty cell. Investigation found that he had
tased three other individuals, including one
African American woman who says she was
pregnant at the time.
Sheriff Walsh and State’s Attorney Julia
Rietz say they have pressed charges against
Myers and have done all they can.
How many more must die before we see
real reform in the local jails?
We don’t need the new $30 million jail
that both Walsh and Rietz are calling for.
We need counselors, social workers, educators,
and other alternatives to mass incarceration.
Join us for a Court Watch demonstration
Wednesday, May 31, 1pm at the county jail,
downtown Urbana.
Come to Court Watch meetings on Saturdays,
4pm at the Independent Media Center,
downtown Urbana, Broadway and Elm, in
the old post office.
Sponsored by Champaign-Urbana Citizens
for Peace and Justice, Visionaries Educating
Youth and Adults (VEYA), A n t i – Wa r, A n t i –
Racism Effort (AWARE), and the Urbana-
Champaign Independent Media Center.
Contact us at lifestratinst19@sbcglobal.
net.

Posted in Human Rights, Prisoners | Leave a comment

Police Stage Attacks on Garden Hills

Police have long been regarded by many in the
African American community
as an occupying army.
The recent use of overwhelming
force by police
in Garden Hills, a predominantly
working class African A m e r i c a n
neighborhood in Champaign, only feeds into
this perception. After a four-hour standoff,
Carl “Dennis” Stewart, 46, was forced into a
corner by police and he killed himself.
The death of this husband and family man
cornered by police should be regarded by all
members of the Champaign-Urbana community
as a sign of continued social ills.
On the afternoon of May 11, 2006, Champaign
police responded to a domestic violence
call in the Garden Hills neighborhood,
just north of Bradley Avenue and west of
Prospect. Upon arriving at the scene, they
found Stewart, a well-liked head custodian at
Booker T. Washington elementary school,
sitting alone in his parked car in the driveway
of a neighborhood house with a gun. It
was learned that Stewart had been separated
from his wife, was going through marital
problems, and was suicidal.
Champaign police quickly leaped into
action by calling in the S.W.A.T. (Special
Weapons and Tactics) team and rolling out
the force’s prized A.P.C. (Armored Personel
Carrier), an expensive high-tech tank
designed to suppress mobs and riots. Intead
of handling this as a potential suicide, the
police reacted as if this were a terrorist
attack.
Police brought in a hostage negotiator,
but after several hours they had gained no
ground. Pinned into a corner by the police
tank, Stewart attempted to flee in his car, and
was trapped by police. The situation ended
with the worst outcome when Stewart turned
the gun on himself.
A new watchdog organization called
Community Court Watch grew out of Cop
Watch efforts that began over two years ago.
Court Watch members Aaron Ammons of CU
Citizens for Peace and Justice, Tanya
Parker of Habari Connection, and myself
went out into the Garden Hills community to
interview people about their perception of
the police reaction.
One woman who lives on Joanne Lane,
where the standoff occurred, told us she has
not received a full explanation from the
police. The first thing she saw was police
with drawn pistols and rifles in her front
yard. When she went outside, she was sternly
directed by police to go back into the
house. Her greatest concern was for her child
who was returning home from school.
She went on to explain that she saw the
armored tank chase Stewart’s vehicle up the
block. She described the site where the suicide
occurred and told us it looked like the
armored tank had rammed Stewart’s car,
pushed him off the road and into a post.
Other neighbors we interviewed told us
they heard six shots, not the alleged single
gunshot.
Many we talked to expressed their concern
that police did not allow family members
to talk with Stewart. Aphoto in the May
12, 2006 issue of the News-Gazette showed
Stewart’s brother restrained by police, quoted
as crying repeatedly, “You’re just going to
shoot him anyway.”
One interviewee who knows Stewart’s
mother said that even she was not given a
chance to talk to her own son. Police brought
Stewart’s mother to the scene, but would not
allow her to talk to him. “If anyone could,”
the interviewee explained, “certainly a mother
could talk to her son.”
Someone else we talked to said she also
knows the family. She claimed that it was
after police cut off a phone conversation
between Stewart and his wife that he took off
in his car.
A witness told us that the white hostage
negotiator was not very helpful. Watching
the incident from the front window of his
house, he stated bluntly that after listening to
the negoiator, he was ready to kill himself.
One question raised is: why a hostage
negotiator and not a suicide counselor?
Pointing to Arrowhead Lanes bowling
alley at the end of the street, a neighbor
described the army of police officers lined up
in the parking lot, allwearing black uniforms.
While we interviewed her, a UPS truck drove
b y. Gesturing at it, she said the police truck
was even bigger – a “big blue tank.” I asked
if the police seemed as if they were carrying
out a military exercise. She said, “Shoot, they
was worse than the military. ”
I asked one woman if it could have ended
another way. She told me, “It went down
exactly how they wanted it to go down. He
was Black. They didn’t care.” Do you think
this would have happened in a white neighborhood?
She said, “Hell no!”
Those we interviewed felt that only half
the story has been told by the local media.
The News-Gazette did little more than dictate
what the police told them to say. In the
newspaper, Champaign Police Chief R.T.
Finney congratulated his force and said,
“There was a considerable amount of
restraint shown” (5/13/2006).
Two years ago, when the African American
community opposed the purchase of
Tasers in Champaign, Chief Finney was just
beginning his tenure with the force. After the
City Council failed to endorse the purchase
of Tasers, Finney agreed it was best and said
it should be his priority to improve his relationship
with the community (News-Gazette
3/25/2004).
After this latest police stunt in Garden
Hills, it does not look like Chief Finney has
made much progress in this relationship.
In Urbana, new Police Chief Mike Billy
is talking about reinstituting the Street Crime
Unit to fight drugs, yet another heavy-handed
police response to what is at its root a
problem that should be treated through
social services, not more police raids.
Of course, an investigation will most
likely absolve the Champaign police department
of all blame. Unfortunately, community
relations between African American residents
and the police will continue to worsen.

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Is Justice Blind?

There is a growing disparity
in America between those
who receive health care, and
those who do not. Nowhere is
this disparity more apparent
than here in Champaign, Illinois.
There is a young lady
here in Champaign, 21 years of age, who is
legally blind, suffers from a brain tumor, and
has a slipped disk in her lower back.
Her health conditions are fully documented,
so there is no question about the reality of
her ailments. With such documentation, one
would think that she would have no problem
with receiving medical assistance.Wrong! Not
only has she been refused medical help from
the many doctors here in Champaign, she has
been denied public assistance, and has been
refused help from the office of Social Security.
Although this young woman is legally
blind, she has three percent better vision in her
right eye than in her left eye, and this is above
the minimum to receive anymedical assistance.
The real reason she has been denied medical
assistance is because she is poor. She is
certainly not the only person to suffer from a
health care system that condemns one to death
for being poor, and offers a better quality of
life to those who are more affluent. In Champaign,
to be poor and ill is punishable by
DEATH!
Earl Robinson, First Citizen, works around
issues of health care and economic justice. He
is a student at Parkland College in criminal
justice.

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That Same Old Song and Dance

Here we are once again, talking about the
chief. You know who I mean. Not the fire
chief, not the police chief, but our own dearlyinvented,
unfailingly-controversial, nationalcelebrity,
real live imaginary Indian chief. It
just goes on and on—the story of the two
towns, the buckskin gown, the two Dee
Browns, and the halftime dancer with the multiple
million-dollar frown. Will it ever end?
On April 28, 2006, the Executive Committee
of the NCAA, the membership organization
that governs college sports, turned down
an appeal by the University of Illinois to keep
the sports symbol of its Champaign-Urbana
campus teams. UIUC is now out of compliance
with the NCAA and ineligible to host
post-season events.
Athletic Director Ron Guenther immediately
said the ruling would have an “unbelievably
negative effect” on the sports program.
Chief fans criticized Guenther as defeatist.
Chairman of the Board of Trustees Lawrence
Eppley backed Guenther in a commentary in
the Champaign-Urbana News-Gazette on May
7. The commentary ended, “I value Ron’s
counsel and commitment to excellence in Illini
athletics. All loyal Illini do.”
In contrast, Eppley never issued one word
of support for Nancy Cantor, Chancellor of the
campus from 2001 to 2004, when she was
attacked day after day in letters to the editor,
state-wide billboards, and on local talk radio
for saying that an inclusive campus was her
priority.
For the past ten years, UIUC has
paid a huge price to keep the
chief—millions of dollars in cash
and wasted resources, a divided
student body, disaffected faculty,
painful tensions on campus,
especially for the few Native students,
declining respect from academic
peers, contradictions between
its mission to diversity and reality, compromised
integrity. The school’s leadership
was willing to pay all those prices, although
any one seemed exorbitant to many of us.
But now, the price is even higher, and
probably, finally, just too high: the sports program
will suff e r. The men’s tennis team,
although they have little connection to the
chief, could not host championship events this
year. Trying to compete while out of compliance
with NCAA regulations is like trying to
play basketball in lead shoes. The other teams
are bound to win. They’ll recruit the most
competitive athletes and coaches and the consequences
will be felt for years.
Aside from Guenther’s real-politik, the
response of boosters has been indignation at
the big bad NCAA, which they say has overstepped
its bounds, and lots of chest-thumping
about local control. Governor Rod Blagojevich
commented that the NCAA was “out of line”
and Eppley said, “The NCAA’s insistence on
dictating social policy for a few select member
institutions intrudes on the University of Illinois
Board of Tr u s t e e s ’ autonomy…”
Jumping into the breach, Representative
Tim Johnson and House Speaker Dennis
Hastert introduced a bill in Congress that
would limit the NCAA’s ability to sanction
schools because of their mascots or team
names. Late-night comedians are probably
sending them flowers.
Their bill is called the “Protection of University
Governance Act of 2006.” T h r e e
Democrats also co-sponsored, proving that
grandstanding for political gain and stupidity
are non-partisan. At this particular moment in
history, the Speaker of the House introducing
a law protecting universities from overactive
surveillance by the NCAA is some kind of
tragic chutzpah.
It’s also a surprise that Johnson is now
committed to protecting university autonomy.
He took the opposite position in 1995 when he
thought the university might retire the chief,
sponsoring a bill in the Illinois state legislature
to overstep the university’s authority. He
did this against the wishes of university leaders
who considered it a dangerous precedent.
After introducing HR 5289 to Congress,
Johnson commented that the NCAA should
“leave the social engineering to others.” Roger
Huddleston, a sports booster and pro-chief
activist, said recently, “The Chief is not the
issue, as much as I love the Chief. This is
about right of self-determination.”
The comments about social policy, social
engineering, and local control recall the
rhetoric of the States’ Rights Dixiecrats in
1948. These southern politicians left the
Democratic Party because of President Truman’s
civil rights agenda, which included
anti-poll tax and anti-lynching legislation. The
keynote speaker at the States’ Rights convention,
Frank Dixon, accused Truman of “trying
to enforce a social revolution in the South.”
Strom Thurmond, the States’ Rights candidate
for President, urged southerners to fight for
local self-government so they could keep
white rule. He frequently said the issue was
not so much civil rights as constitutional
states’ rights. It’s the same old song and dance.
The NCAA Executive Committee decision
is final and won’t change no
matter how much Illinois politicians
threaten. As for overstepping
its bounds, the NCAA
exists to govern college sports.
This is why UIUC belongs—so
that the teams they compete
against train and recruit under the
same rules they do. By enforcing Title IX,
the NCAA has engineered a social revolution—
pre-Title IX my high school didn’t have
sports teams for girls!
TheNCAAhas “core values” which include
a strong commitment to diversity and inclusiveness,
demonstrated through hundreds of
programs that promote gender and racial equity
for athletes, coaches, staff, and fans. The mascot
policy makes explicit that this commitment
extends to Native Americans and creates consequences
for schools that refuse to comply.
UIUC has chosen to keep its students, fans,
and alumni in the dark about the true nature of
the opposition to Chief Illiniwek. The repeated
requests for retirement of the logo and performance
from Native alumni, national Native
leaders, and the Peoria Tribe of Oklahoma, the
legitimate descendants of the Illinois tribes,
never appear in the alumni magazine. Nor do
the criticisms of the civil rights community,
including recent honorary degree recipient
Julian Bond. Alumni don’t realize that Chief
Illiniwek downgrades the prestige of their
school and the value of their degree. Years of
denial and secrecy make the university’s job
harder now.
UIUC was lucky to keep the team name
“Fighting Illini.” It’s a gift from the Peoria
Tribe and the NCAA. A little gratitude would
be in order. The NCAA u rged Illinois to educate
its fans about the new meaning of “Illini”
to ensure they understand it is not a reference to
any living, historical, or imaginary Indian tribe.
A savvy public relations campaign is essential
– picture Dee Brown, the one in the orange
headband, talking about respect. Why not
remind alums that Illinois was also the home of
the other Dee Brown, who re-wrote A m e r i c a n
history to include a Native point of view?
No one can dictate to fans what they can
wear nor what they can do at private parties.But
when pro-Chief fanatics pressure the university
to keep the chief at any cost, they are working
against the best interests of both the Illinois
sports program and the university as a whole.
If the symbol is retired it will be a relief.
But I don’t see anything to celebrate. The university
hasn’t acknowledged this as a civil
rights issue. If UIUC does retire the logo and
performance, it will be because it was forced
to by the only outside institution with a big
enough stick.
I’ve often said that the trustees should have
consulted some mothers. The question I would
put to them is: if you have to pull a band-aid
off a kid’s skin and you know it will hurt, will
it hurt LESS if you do it really, really slowly?
Say, take about 15 years?
My unscientific sample of mothers all
responded, “NO! It will become an obsession
and the kid will think about the band-aid all the
time. Rip it off and go for ice cream.” But
o b v i o u s l y, the Illinois politicos never asked us.
The fact that this issue has been allowed to
fester for so long and do so much damage
demonstrates that the University of Illinois
has serious governance and leadership problems.
Former President of the University of
Illinois and of the American Council of Higher
Education Stanley Ikenberry has called for
reform in the way the trustees are selected. A
larger board, selected in more diverse ways,
would probably have shown more effective
leadership and might not have been hamstrung
by political conflicts of interest.
So whether you’re town, gown, a fan of
both or either Dee Browns, if you care about
UIUC, tell the Governor it’s time to RETIRE
and REUNITE over a very large order of blue
and orange ice cream. For genuine “Protection
of University Governance,” help start a movement
for governance reform. And don’t vote
for a Congressperson that wastes our time
playing Dixiecrat.
Carol Spindel is a lecturer in English at the
University of Illinois at Urbana-Champaign.
She is the author of Dancing at Halftime:
Sports and the Controversy Over American
Indian Mascots.

Posted in Uncategorized | Leave a comment

Waking Up to the Reality of Healthcare in Champaign County

Over the last 22 years, that I have lived,
worked, and attended school in Champaign
C o u n t y, I have used nearly every possible
method to cover health care costs for my
daughter and myself: school insurance, Medicaid,
private HMOs, state-funded HMOs,
state-funded PPOs, and the “no insurance”
out-of-my-pocket method. My experiences taught me that
class affects one’s access to quality health care. However, I
d i d n ’t “wake-up” to the barbarism of our current health system
until I befriended a local Mexican family as part of a
language exchange. I’ll let their 4-year-old, alias Nina, tell
the story.
Hello, my name is Nina. I was born in Urbana, IL. I go to
Public Health for doctors. One time, when I was three, I went
to Public Health for my cavities. Usually there is a lady there
that speaks Spanish to me but I guess she was gone. They
made me go into a room all by myself. There were lots of
grown-ups talking but I didn’t know what they were saying. I
didn’t know when they were going to move the chair and the
things they put in my mouth made noises. I was really scared.
I wiggled a lot. The dentist didn’t look happy. I cried and the
dentist left. A lady in a white coat took me to my parents. She
didn’t say anything to me. She gave my dad a card but I didn’t
know what she said.
The next day Mom called her grown-up friend Marcia
about the card. Marcia came to my house. She said the card
had the names of special dentists for kids (I know that
because she said that in Spanish). Marcia called the dentists.
She said only one of the dentists could give me a special gas
so I wouldn’t wiggle. That dentist wanted my mom to pay hun –
dreds and hundreds and hundreds of dollars. Marcia said the
dentist didn’t take medical cards because special dentists
don’t get paid very much or they have to wait a long time to
get paid when people have a medical card. My mom said that
we didn’t have the money and Marcia looked worried.
I was worried. Even though I’d seen almost every form of
health coverage from the inside out, I didn’t expect to see a
child slipping through the cracks. On the drive home my
guilty anxiety felt like I’d swallowed a knife, with its heavy
handle in my gut and blade in my chest. To alleviate my pain
I called the only resource I could think of, the Champaign
County Health Care Consumers (CCHCC). The receptionist
suggested I contact Lisa Bell, who coordinates the Champaign
County Child Dental Access Program from her home.
“Nina” can tell you the rest.
Later Marcia called and said she I could see the special
dentist after all. Actually, since I live in the country, I’m not
supposed to go to Public Health for my teeth. I’m supposed to
see Lisa Bell. So my mom, Marcia and I went to see Lisa Bell
[4 months after the visit to Public Health]. Lisa let my mom
and Marcia come with me to the big chair. Lisa had a toy for
me to hold. After she looked at my teeth I got a big sticker.
Lisa said that she would call that special dentist and say we
wouldn’t have to pay (Marcia said that in Spanish). I think
Lisa will pay the dentist more money.
[A month] later my mom, Marcia and I went to the special
dentist. She had lots of movies and toys for kids and lots of
colors. I felt special. She also let my mom and Marcia come
with me to the big chair. After the special dentist said things
in English, Marcia repeated them in Spanish. That helped me
know about the gas. My mom and Marcia talked to me a lot
and held my hand and my foot while the dentist was working.
I was just a little scared and I knew to open my mouth really
big. I felt safe. When the gas ran out, I started to pull my hand
up close to my body because my mouth was hurting and I was
getting scared. I started to make a noise like I might cry and
the dentist stopped. She said she didn’t want me to be scared.
She noticed me. I got a toy and I didn’t cry.
My mom says we will go back to the special dentist to fin –
ish the cavities. I know it’s a long time from when I went to
Public Health because I’m 4 1/2 now and I know how to use
the pink fluoride water that the special dentist gave me.
After realizing how out of touch I was with the limitations
of public health care, I conducted a series of interviews with
local activists. Jim Duffett at the Campaign for Better Health
Care taught me that Nina’s experience was not too different
from the many people who use a medical card to cover health
costs. Medicaid recipients often hit a brick wall when referred
to specialists. Few, if any, specialty practitioners are willing
to accept patients with a medical card. Some refuse simply
because they lose money from 1) severely delayed and lowrate
state reimbursements, and 2) increased no-shows from
failed transportation. Others refuse because they do not want
to work with patients they deem to be the riff-raff (i.e., classism,
racism, prejudice…call it what you want). Specialty
programs like the Dental Access Program are often the only
way for Medicaid recipients to see a specialist, and even then
there are long delays (7 months to complete the work in
Nina’s case).
To learn more about the Dental Access Program, I visited
Lisa Bell in her home office. I was amazed at all the work she
does behind the scenes to ensure that children like Nina have
better teeth. She voluntarily educates school children about
brushing their teeth, staying up late to stuff child-friendly
dental kits with her son. She seizes every opportunity to voice
her concerns at a political level. In the middle of my interview,
she called the Illinois Governor’s office to seek more
information about their policies regarding children’s health
care. She works non-stop to secure continued funding for the
Dental Access Program. “Eventually, we’re going to run out
of money and children like you’re little friend will just suffer,”
she warned. I was amazed at how much work it takes for
just one child to see a dentist.
My final interview was with Dr. Ann Robin, a local gynecologist
working atUIUC’sMcKinley Health Center who quietly
puts time in at The Pavillion and Planned Parenthood sites
across central Illinois. She taught me that even though programs
that extend access to health care specialists exist, their
requirements still leave individuals with piecemeal treatment.
The DentalAccess Program is for rural children only: families
within city limits must pay specialists out of pocket. T h e
S t a t e ’s Breast and Cervical Cancer Screening and Tr e a t m e n t
Program covers mammograms and PA P smears and procedures
to remove breast or cervical lesions for income eligible
women. Uninsured women at middle income levels or women
with complicated cases are stuck (e.g., heavy bleeding from
fibroids precludes treatment for cervical lesions, but fibroid
removal is not covered). Women who are non-citizens can
have a medical card while they are pregnant, but only for 2
months after they give birth. Those women who need longterm
treatment (e.g., follow-up work from a complicated Csection,
support for post-partum depression, etc.) are out in the
cold. The medical card will cover specialty interventions for
things like diabetes but not the specialty care for infected
gums that so often accompany and aggravate this condition.
Dr. Robin rattled at least 5 more examples off the top of
her head, including problems with patients crossing state
lines, etc. The bottom line is that time and again people with
these more common complicated cases become rooted in a
vicious downward spiral. In the end, the “behind the scenes”
work for piece-meal treatment ends up costing far more than
providing quality comprehensive care in the first place.
My search ended in emotional exhaustion. Is this really the
status of health care in my community? Do we really de-value
people so much, especially innocent children, that we are willing
to let them rot away simply because they cannot pay?
One step toward bettering access is the Illinois All Kids
Healthcare Program proposed by Governor Blagojevich that
begins July 1, 2006. This program offers affordable health
insurance on a sliding scale for Illinois children 18 or
younger, regardless of family income, and regardless of legal
status and pre-existing conditions. Basically it extends programs
like Medicaid and Kid Care to higher income levels
and replaces the primary provider approach with a more
effective case management approach that follows participants
over time (i.e., to ensure comprehensive care).
As good as it sounds, only time will reveal this program’s
success. To ensure that the program is serving the truly “uninsured”,
children must be uninsured for at least 6 months
before being enrolled in the program (eventually this will
increase to 12 months). Even though it would not be “cost
effective” for currently insured families at higher income levels
to switch to All Kids, theoretically, families who are barely
covering health insurance costs could risk going “uninsured”
just to qualify for less-expensive premiums. Even
though a consultant for Gov. Blagojevich is spreading the
promise of timely payments at competitive rates, providers
may not sign on at the necessary rate, thereby overwhelming
an already drained system. Consequently, children like Nina
would have to compete for the few available slots with even
more children, many who could afford care elsewhere.
For the near future, it still seems we’ll be a lot closer to
filling the pockets of health insurance CEOs than putting
people over profit. Or, as Nina would say, “Insurance companies
will get to keep their big buildings.” After speaking
with several local health care advocates for this article, I am
more convinced than ever that we need a more streamlined
single payer system for health care, and I’d like to add a coste
ffective wrap-around program for families and young children
to that plan (e.g., prenatal and postnatal nurse home visiting).
I hope we get before my daughter, let alone Nina, has children.

that I have lived,
worked, and attended school in Champaign
C o u n t y, I have used nearly every possible
method to cover health care costs for my
daughter and myself: school insurance, Medicaid,
private HMOs, state-funded HMOs,
state-funded PPOs, and the “no insurance”
out-of-my-pocket method. My experiences taught me that
class affects one’s access to quality health care. However, I
d i d n ’t “wake-up” to the barbarism of our current health system
until I befriended a local Mexican family as part of a
language exchange. I’ll let their 4-year-old, alias Nina, tell
the story.
Hello, my name is Nina. I was born in Urbana, IL. I go to
Public Health for doctors. One time, when I was three, I went
to Public Health for my cavities. Usually there is a lady there
that speaks Spanish to me but I guess she was gone. They
made me go into a room all by myself. There were lots of
grown-ups talking but I didn’t know what they were saying. I
didn’t know when they were going to move the chair and the
things they put in my mouth made noises. I was really scared.
I wiggled a lot. The dentist didn’t look happy. I cried and the
dentist left. A lady in a white coat took me to my parents. She
didn’t say anything to me. She gave my dad a card but I didn’t
know what she said.
The next day Mom called her grown-up friend Marcia
about the card. Marcia came to my house. She said the card
had the names of special dentists for kids (I know that
because she said that in Spanish). Marcia called the dentists.
She said only one of the dentists could give me a special gas
so I wouldn’t wiggle. That dentist wanted my mom to pay hun –
dreds and hundreds and hundreds of dollars. Marcia said the
dentist didn’t take medical cards because special dentists
don’t get paid very much or they have to wait a long time to
get paid when people have a medical card. My mom said that
we didn’t have the money and Marcia looked worried.
I was worried. Even though I’d seen almost every form of
health coverage from the inside out, I didn’t expect to see a
child slipping through the cracks. On the drive home my
guilty anxiety felt like I’d swallowed a knife, with its heavy
handle in my gut and blade in my chest. To alleviate my pain
I called the only resource I could think of, the Champaign
County Health Care Consumers (CCHCC). The receptionist
suggested I contact Lisa Bell, who coordinates the Champaign
County Child Dental Access Program from her home.
“Nina” can tell you the rest.
Later Marcia called and said she I could see the special
dentist after all. Actually, since I live in the country, I’m not
supposed to go to Public Health for my teeth. I’m supposed to
see Lisa Bell. So my mom, Marcia and I went to see Lisa Bell
[4 months after the visit to Public Health]. Lisa let my mom
and Marcia come with me to the big chair. Lisa had a toy for
me to hold. After she looked at my teeth I got a big sticker.
Lisa said that she would call that special dentist and say we
wouldn’t have to pay (Marcia said that in Spanish). I think
Lisa will pay the dentist more money.
[A month] later my mom, Marcia and I went to the special
dentist. She had lots of movies and toys for kids and lots of
colors. I felt special. She also let my mom and Marcia come
with me to the big chair. After the special dentist said things
in English, Marcia repeated them in Spanish. That helped me
know about the gas. My mom and Marcia talked to me a lot
and held my hand and my foot while the dentist was working.
I was just a little scared and I knew to open my mouth really
big. I felt safe. When the gas ran out, I started to pull my hand
up close to my body because my mouth was hurting and I was
getting scared. I started to make a noise like I might cry and
the dentist stopped. She said she didn’t want me to be scared.
She noticed me. I got a toy and I didn’t cry.
My mom says we will go back to the special dentist to fin –
ish the cavities. I know it’s a long time from when I went to
Public Health because I’m 4 1/2 now and I know how to use
the pink fluoride water that the special dentist gave me.
After realizing how out of touch I was with the limitations
of public health care, I conducted a series of interviews with
local activists. Jim Duffett at the Campaign for Better Health
Care taught me that Nina’s experience was not too different
from the many people who use a medical card to cover health
costs. Medicaid recipients often hit a brick wall when referred
to specialists. Few, if any, specialty practitioners are willing
to accept patients with a medical card. Some refuse simply
because they lose money from 1) severely delayed and lowrate
state reimbursements, and 2) increased no-shows from
failed transportation. Others refuse because they do not want
to work with patients they deem to be the riff-raff (i.e., classism,
racism, prejudice…call it what you want). Specialty
programs like the Dental Access Program are often the only
way for Medicaid recipients to see a specialist, and even then
there are long delays (7 months to complete the work in
Nina’s case).
To learn more about the Dental Access Program, I visited
Lisa Bell in her home office. I was amazed at all the work she
does behind the scenes to ensure that children like Nina have
better teeth. She voluntarily educates school children about
brushing their teeth, staying up late to stuff child-friendly
dental kits with her son. She seizes every opportunity to voice
her concerns at a political level. In the middle of my interview,
she called the Illinois Governor’s office to seek more
information about their policies regarding children’s health
care. She works non-stop to secure continued funding for the
Dental Access Program. “Eventually, we’re going to run out
of money and children like you’re little friend will just suffer,”
she warned. I was amazed at how much work it takes for
just one child to see a dentist.
My final interview was with Dr. Ann Robin, a local gynecologist
working atUIUC’sMcKinley Health Center who quietly
puts time in at The Pavillion and Planned Parenthood sites
across central Illinois. She taught me that even though programs
that extend access to health care specialists exist, their
requirements still leave individuals with piecemeal treatment.
The DentalAccess Program is for rural children only: families
within city limits must pay specialists out of pocket. T h e
S t a t e ’s Breast and Cervical Cancer Screening and Tr e a t m e n t
Program covers mammograms and PA P smears and procedures
to remove breast or cervical lesions for income eligible
women. Uninsured women at middle income levels or women
with complicated cases are stuck (e.g., heavy bleeding from
fibroids precludes treatment for cervical lesions, but fibroid
removal is not covered). Women who are non-citizens can
have a medical card while they are pregnant, but only for 2
months after they give birth. Those women who need longterm
treatment (e.g., follow-up work from a complicated Csection,
support for post-partum depression, etc.) are out in the
cold. The medical card will cover specialty interventions for
things like diabetes but not the specialty care for infected
gums that so often accompany and aggravate this condition.
Dr. Robin rattled at least 5 more examples off the top of
her head, including problems with patients crossing state
lines, etc. The bottom line is that time and again people with
these more common complicated cases become rooted in a
vicious downward spiral. In the end, the “behind the scenes”
work for piece-meal treatment ends up costing far more than
providing quality comprehensive care in the first place.
My search ended in emotional exhaustion. Is this really the
status of health care in my community? Do we really de-value
people so much, especially innocent children, that we are willing
to let them rot away simply because they cannot pay?
One step toward bettering access is the Illinois All Kids
Healthcare Program proposed by Governor Blagojevich that
begins July 1, 2006. This program offers affordable health
insurance on a sliding scale for Illinois children 18 or
younger, regardless of family income, and regardless of legal
status and pre-existing conditions. Basically it extends programs
like Medicaid and Kid Care to higher income levels
and replaces the primary provider approach with a more
effective case management approach that follows participants
over time (i.e., to ensure comprehensive care).
As good as it sounds, only time will reveal this program’s
success. To ensure that the program is serving the truly “uninsured”,
children must be uninsured for at least 6 months
before being enrolled in the program (eventually this will
increase to 12 months). Even though it would not be “cost
effective” for currently insured families at higher income levels
to switch to All Kids, theoretically, families who are barely
covering health insurance costs could risk going “uninsured”
just to qualify for less-expensive premiums. Even
though a consultant for Gov. Blagojevich is spreading the
promise of timely payments at competitive rates, providers
may not sign on at the necessary rate, thereby overwhelming
an already drained system. Consequently, children like Nina
would have to compete for the few available slots with even
more children, many who could afford care elsewhere.
For the near future, it still seems we’ll be a lot closer to
filling the pockets of health insurance CEOs than putting
people over profit. Or, as Nina would say, “Insurance companies
will get to keep their big buildings.” After speaking
with several local health care advocates for this article, I am
more convinced than ever that we need a more streamlined
single payer system for health care, and I’d like to add a coste
ffective wrap-around program for families and young children
to that plan (e.g., prenatal and postnatal nurse home visiting).
I hope we get
Posted in Healthcare | Leave a comment